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Jose AE

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Jose AE's Status Updates

"I had checked this page several times since my latest post in September of last year and had not seen any new topics, posts, etc. It shows I'm not following anybody when in fact I had been following at least 2 people. I was just wonder if this web page is still active. It's been almost 14 months since my RC/IC and just recently I noticed some blood in my urine (with no other major symptoms). I sent a message to my surgery group and was given an order for a urine culture. Not sure how to handle this, last time I had a UC I was still able to pee "normally". I understand it's not recommended to take a urine sample right from the urostomy pouch but rather directly from the stoma or through a catheter. Any feedback will be greatly appreciated."

  1. thanks for your update. Yes, our community is still active. To see the latest updates, use this link to see what our members are saying: https://bladdercancer.net/community. I am glad you sent a message to your surgery group, they should be able to answer your question and your concerns with collecting the urine through the urostomy pouch. In the meantime, I did find this article, I hope it is helpful: https://www.ostomy.org/wp-content/uploads/2021/04/Urostomy-Sample-Instruction-Card-for-Patients-2018.pdf. Please keep us posted on what your doctor says. Jill, bladdercancer.net team

  2. Will do. Thanks for the links.