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sarah.wallin posted a new activity comment 3 days, 15 hours ago

Hi donnaventura, thanks for sharing here about your husband’s bladder cancer journey, as well as his cystectomy. I’m sorry to hear about his complications with uti’s and one blocked ureter, which has made it a very hard 5 months for you both 🙁

Community members here have shared a range of positive and negative experiences of recovery after…

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donnaventura commented a story 4 days, 6 hours ago

Were the two post cystectomy surgery for scar tissue in the ureter at the illeal conduit. I am a care giver for my husband; cystectomy in November 2017, recovery complicated by repeat uti’s, and one ureter is blocked. Anticipate an open surgery to repair in the future.
Were your subsequent surgeries minimally invasive? If they were open, how w…

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donnaventura posted an update 4 days, 6 hours ago

I am a caregiver as my husband was first diagnosed with bladder cancer almost 4 years ago. Despite several rounds of BCG treatment he had reoccurrences of high grade non-invasive carcinoma in situ. November, 2017, he had a complete cystectomy with illeal conduit. Complications include uti’s, one blocked ureter demanding a nephrostomy tube f…

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sarah.wallin answered a question 1 week, 1 day ago

Brandy78, Thanks so much for sharing about your BCG experience. I’m glad that it was not as scary as you thought and that you felt that your symptoms were pretty mild. I am also so happy that you have a great team of women who were able to care for you We appreciate you taking the time to share about this with the community!
-Sarah (…