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Pepe528 commented on the post, The Difference Between Mitomycin and BCG 1 day, 6 hours ago

I SEE THAT THESE TWO ARE DIFFERENT –MY DOCTOR THE LASYT TIME GAVE ME 6 TREATMENTS OF THIS STUFF CALLED GINGBINE I THINK CALLED –IT BURNED LIKE HELL AND CAUSED MY BLADDER TO BECOME VERY VERY IRRATATED — AFTER THE SIX WEEK HE LOOKED INSIDE AND SIAD ITS OK –IT SHOWS ITS WORKING —-HE GAVE ME THAT BECAUSE I GUESS THERE WAS A WORLD WIDE SHORTAGE…

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Damnskippy commented on the post, What Now? 3 days, 18 hours ago

Also being someone who was given a bleak outlook for my bladder cancer I went way outside of traditional medicine. Though it’s gotten a lot of bad press lately, I use Rigvir, the cancer not only hasn’t advanced but it’s receded. We are each responsible for our decisions and for me…this is working and I’m back to a normal life and energy level.

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gsess commented on the post, When 13 Hours Feels Like 90 Seconds 4 days, 10 hours ago

Jim, I’ve been there done that 2x. The 1st time was only 8 or 9 hours @ WHVA. The 2nd time to correct some problems was 13 hours. 1st time I was out in 5 days and then the fun began. Because I had chemo 1st my resistance was low. Plus my new ureters were not functioning properly. I wound up with nephrostomy tubes. That’s 2 more pouches then I…

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Pepe528 commented on the post, A Rollercoaster Ride Like No Other 4 days, 18 hours ago

WELL HOW I’AM I DOING I GUESS HANGING IN THERE I GUESS –I GOT ANOTHER3 month break –but july 11th got to go get checked again -its been crazy –its hard to plan a vacation and want too get this all behind me –i guess it could be a lot lot worst –iam 70 now hope too make it too 80 or 85 hey i guess a lot of people are in a worst place than i…

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sarah.wallin posted a new activity comment 4 days, 21 hours ago

Hello @senchen, that’s excellent you’ve been going for follow up exams after your BCG. It can be a lot of information at once, so it’s normal to have questions after leaving your appointment. You are right that recurrence is quite common with bladder cancer. I’d suggest asking your doctor about if those spots looked cancerous or if this is a…