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MirletaLiz commented on the post, Will Drinking Be the New Smoking? 2 hours, 51 minutes ago

Hi Sarah – Thanks for the link. (I don’t get to log in frequently.) Yes, it was quite a shock. I did have some genetic testing done (for Lynch Syndrome) and I was negative. Unfortunately, this is not something covered nor cost effective so I’ve been unable to go further than this. Also, at the time of my diagnosis, I was unaware of the…

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BrownEyedGirl66 shared a new story 9 hours, 32 minutes ago

I was diagnosed with bladder cancer June 2017. That was in Florida. I moved to North Carolina April of 2018.

I am on my 3rd Urologist since then.

Surgeries, BCG, scopes, scans
I have had many surgeries to […]

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Diane shared a new story 2 days, 4 hours ago

To make a long story short, my cancer started in 2015 with my kidney. I had it removed plus, now have bladder cancer. Had 3 TURBTs. After the second one, I had chemo for 6 weeks last year, now had another & wait 4 […]

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Mac Howard commented on the post, Fear: The Universal Experience 4 days, 6 hours ago

Renata, Thank you, I am always touched when a piece reaches someone and echoes their experiences. You’re right to see the wisdom cancer can encourage us to have. There is a Buddhist saying,”The problem is you think you have time.” Cancer can give us a perspective that includes a new outlook on time. Best wishes. Mac

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Renata Louwers commented on the post, Fear: The Universal Experience 4 days, 20 hours ago

I love this piece, Mac. You are so correct about the universality of the fear and how it comes and go but is not us. As a caregiver, I lived with constant fear that my husband’s death was encroaching on us and how and what would it look like.This stayed with me continuously. Yet. at some point, though, I realized that death, disease, and decline…

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Renata Louwers replied to the topic BCG Ready Set Go!!! in the forum Treatments 6 days, 7 hours ago

Michelle,

So glad to hear you are now able to start BCG. That’s wonderful (relatively speaking :). I am sorry it’s been such a complicated road to get to it. I actually happen to be familiar with temporal arteritis because my Mom had it. She was on the high steroids like you, for a while, and then normalized in the 4mg-10mg range depending on her…

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Renata Louwers commented on the post, What Do I Tell My Wife? 6 days, 7 hours ago

Thank you for sharing the emotional complexities of what you faced. We all do the best we can with the complicated mess that bladder cancer imposes upon us. That’s all any of us can do in any given moment. -Best, Renata (moderator)