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BCG Doses

I recently saw a discussion on Facebook that mentioned that the dose that several patients received at their treatment facilities was based on how many patients were scheduled for BCG that day.

I'm curious - Are any of you aware of this practice at your facility? Were you told about this practice before deciding what treatment options to pursue?

  1. This is a great question Liz! I'm very curious to see if anyone else has heard of this happening.

    1. I am very curious as well. I'm wondering if we should make a post on the Facebook page, even!

    2. Interesting question ladies - I have read on recent posts on a variety of FB pages that many people are either being delayed in BCG treatments or receiving 1/2 doses. I hope that the production of this valuable treatment can be increased soon so that those who need it can receive it in a timely manner. My best to all. Linda ( moderator, team member)

  2. My research online indicates that BCG has been in short supply since at least 2017 (possibly longer). I've seen no explanation why - except that there's only one source (Merck) in the whole world. You would think that the standard medical treatment for bladder cancer which has been in use for 20+ years would be profitable enough to have multiple suppliers.

    1. @gnick540 I completely agree. I am surprised that no one else except Merck makes this as it is a standard treatment. When you consider we have at least 5 major manufacturers for ileal conduit supplies you would think more would jump on the band wagon for BCG. I certainly hope that we see changes in this in the near future so patients are not waiting for needed treatments due to short supply as some are now. My best. Linda ( moderator, team member)

    2. I'd think they would plan better and do better! I know for a fact it has been longer as I was diagnosed in 2016 and I remember early conversations with people in Facebook groups who had been complaining about it and dealing with it for years then! (Or at least what felt like years to them!) ~Liz, Moderator

  3. Had a 4 1/2 month period between induction 6 doses and maintenance 3. Part availability, part office scheduling in the delay. Been praying production is ramped up.

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