Starting BCG for stage 1 and want details…what happens when I’m home? How will I feel, physically? Dr. Said Id have UTI symptoms, but have others experienced more than that? I’ve read about the precautions (bleaching the toilet) but want to hear from someone whose gone through it.
Hi Lisamimm, thank you for reaching out and seeking some advice. I was diagnosed with stage 1, high grade bladder cancer and went through surgery to remove tumour. I opted for the BCG treatment and like you knew very little about what to expect. The treatment itself is relatively simple and the procedure was very quick and pain free. I highly recommend that you try to have someone around after treatment, at least for the first 24 hours. I always felt very good after treatment, but the effects can creep up on you, so it’s very important to rest for 24 hours and drink plenty of water. In regards to UTI’s I never suffered from this, but the burning sensation whilst urinating is uncomfortable and your urgency will increase along with your frequency. This can last up to four days after, so don’t be to worried if it still burns whilst urinating. Some people go through their 6 cycles with very little side effect from the BCG, however after my fourth cycle I ended up with a terrible fever and very aching limbs, which lasted for 24 hours and I didn’t get back to normal for at least 3 days after. I was told it was part the BCG doing its work and was able to complete my 6 treatments. I hope this was of some help to you and please get back to us if you need any more advice – Noel, (BladderCancer.net Team Member)
Thank you, Noel. I appreciate you sharing. I have stage 1, high grade as well. 5cm tumor removed. It’s been 7 weeks, so its time for BCG. I can do this, but am nervous about those “possible” side affects that may or may not happen. Fear if the unknown, I guess. You helped me very much.
I’ve just finished my 3rd TURBT after 2 rounds of 6 installations of BCG after the first 2 TURBT. I am still at T1 high grade with no bladder muscle invasion. I’ve been lucky with very few after effects from the BCG treatments. The most annoying is some burning along with urgency to go often. It does lessen with time and Uribel for the burning helps immensely. Everyone reacts differently to the process but if you have a good doc he will listen and help you along the path.
Doing well, thank you. Two down, 4 to go! No noticeable side affects yet. I’m being told I might feel burning and UTI symptoms at the third treatment. So I’m hoping for the best, but maybe I’ll get lucky and it will be mild. I appreciate you checking in!
I’ve finished my 6 weeks BCG treatment and am happy to have come thru fairly well. I have a scope on Jan 9 checking for recurrence. Until then, happy to be feeling well and enjoying the Christmas season. My only side effects are extreme tiredness. Hoping for the best as I continue on this journey.
My best to everyone fighting this horrible disease!
Lisa, it’s nice to hear back from you. Congrats on finishing your 6 weeks of treatment!! Good to hear that things went fairly well and that you’ll get a break during the Christmas season. Extreme tiredness can be really challenging to push through…you are definitely not alone. I’m linking you to a conversation thread about fatigue if you’re interested in sharing or discussing further (https://bladdercancer.net/q-and-a/experienced-fatigue-result-treatment/). Thanks for those encouraging words. I very much appreciate hearing from you from beginning to end of your treatments. We are always here for you so please keep in touch, I will be thinking of you. Have a wonderful Christmas holiday! -Sarah (BladderCancer.net Team Member)