Starting BCG for stage 1 and want details…what happens when I’m home? How will I feel, physically? Dr. Said Id have UTI symptoms, but have others experienced more than that? I’ve read about the precautions (bleaching the toilet) but want to hear from someone whose gone through it.
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I just found this site last week and read all the stories and wish to thank all of you. Makes me realize I am not the only one with this curse. I posted my story today.
Looking for a urologist at UCSF for a friend newly diagnosed. Any recommendations?
In response to a poll, most bladder cancer community members said that bladder cancer has influenced the way they view sex and intimacy.
How has bladder cancer impacted your sex life?
It’s been a year since being diagnosed with t1 high grade non-invasive bladder cancer. So I decided to look back at some of the blogs I was putting out to friends and family at the beginning of my journey. Below is my second blog put out and it reads:
Since learning of my cancer in April my living conditions have changed dramatically. Prior to the cancer I was very out going, confident and able to mix well with others. I am now anxious every time I leave the house and feel more comfortable staying in doors. I’m unable to sustain the physical activities I once use to participate in and living with the pain is so depressing. The mental discomfort prior to each toilet use is draining and the actual effort of passing urine is excruciating and relentless. I feel trapped at the moment and long for the day when I can get my life back on track.
What totally amazes me most about this blog is that I honestly couldn’t remember now a year down the road that I was actually feeling like that. Don’t get me wrong it’s been a very tough year with a lot of painful moments and frustrating times, but for some reason my main memories have been about the positive things that have happened, such as responding well to the BCG treatment I’ve been receiving. The techniques I’ve learnt for coping with my anxiety when having a cystoscopy and the moment I was told my recurrence was low grade superficial. So I wondered if others had similar experiences to me when it came to your overall thoughts about your bladder cancer journey?
Do you appreciate things more after having bladder cancer? What do you appreciate most in your life?
Do you have any tips for diet and exercise? This is a place to share about what has helped you, or any challenges you may face.
Do you think you got all the information you needed when you were first diagnosed with bladder cancer? What information would have been helpful to have?
Whether you have been diagnosed with bladder cancer recently, long ago, are in treatment, out of treatment, or a caregiver, self-care can play an important role in your well-being.
What self-care activities have helped you the most? Do you have any self-care ideas you would like to share? Please post in the comments below!
Having cancer is mentally and physically draining. So when going through treatment the sex & intimacy with your partner can decrease. its of course at times impossible for certain periods after treatment to even consider whether you could have sex. My first 4 months after diagnosis were filled with 2 operations to remove tumours. after the first operation it took me 4 weeks to recover, or so I thought. At that point after the 4 weeks, me and my wife attempted to have sex, which turned out to be very painful for me. This of course can leave your partner feeling fearful of trying or contemplating having any intimacy with you, because they fear leaving you in pain. As a male I found that whilst having treatment and in recovery post any procedure, I became very weary of having any sex or intimacy. For a while I never considered how my wife felt about the lack of intimacy between us and my wife welcomed the conversation when I asked her how she felt. It turned out that although I was suffering, my wife too was emotionally suffering because of the ‘intimate’ distance my cancer created between us. What I didn’t realise being a typical man, is that a kiss and a cuddle can go a long way. The sex will come in time, which it did, and I’ve been trying my best to be intimate with my wife whenever I’m having treatment. I’m now nine months into my cancer journey and I’m more aware of how I will be feeling during treatments and what my recovery times will be. I’m also now aware of when sex with my wife will be satisfying for both of us. It does take time and getting used too, but the sex & intimacy will get better, so long as you both work at it and try to understand each others needs and fears.
Noel, BladderCancer.net Team Member
What are your tips to get you through the holidays?
A bladder cancer diagnosis can feel like a whirlwind of information, including the doctor’s advice for treatment. It can be difficult to know what to expect from the treatment you may receive.
This is a space to share about your treatment experiences, and read about others.