When Dreams are Shattered by a Cancer DiagnosisPrior to my cancer diagnosis, me, my hubby and our boys loved to travel. We wanted to see as much of the world as we could. Taking every opportunity that...Reactions0reactionsComments10 comments
Life Goes On...As the title suggests, life does indeed go on... so here I am with No Evidence of Disease and yet still considered to be terminal, so what can I do?...Reactions0reactionsComments2 comments
You Want to Get Rid of the Cancer, Don't You?I thought I’d be ready to go back to work after my TURBT procedure. I was released from hospital on the Friday with instructions to return Monday to have the...Reactions0reactionsComments0 comments
I’m Curtis, and This is My Immunotherapy StoryI remember that day: hearing the doctor explain my clinical trial options which involved immunotherapy. I was fearful and full of questions. I remember thinking: what medication will the doctor be giving...Reactions0reactionsComments0 comments
Choosing to Have My Bladder RemovedWe had already spoken to my Oncologist, in November 2016, about having the bladder removed; however, I had decided not to go ahead, as removing it wouldn’t really change my...Reactions0reactionsComments0 comments
If Only All Cancers Were Treated EqualMay is bladder cancer awareness month! We’ve all been shocked by reading some of the startling statistics like bladder cancer is now the 6th most common cancer, and unfortunately, that...Reactions0reactionsComments7 comments
The Power of Cancer StoriesWhen my first husband Ahmad was diagnosed with metastatic bladder cancer, I started to read and learn everything I could about the disease. At that time, in 2013, there weren’t...Reactions0reactionsComments0 comments
Before, During, and After My CystectomyThe morning of my radical cystectomy came, although I swear that night felt like it would never end. I said goodbye to my husband Tim and to my son Ash...Reactions0reactionsComments0 comments
Am I Dreaming?Walking into an operating room for the first time can be an intimidating experience. The “theater” I entered at Mt. Sinai was small, someone might even describe it as intimate...Reactions0reactionsComments0 comments
Sexual Impact on WomenWhile I was prepping to write an article for BladderCancer.net, I came across an article that really opened my eyes to the impact of Bladder Cancer (BC) on female sexuality...Reactions0reactionsComments1 comments
A Bag for Life!I was allowed to go home on day 5 after my radical cystectomy. I was eating, only little bits, mostly yogurts and jelly, and my bowels had opened, although I...Reactions0reactionsComments0 comments
Send Lawyers, Drugs, and Money – Sometimes Cancer Isn’t About YouYou just got the call. You have cancer. For some it will be a low number; Stage 1. For others the number is higher, 3 or 4. While some of...Reactions0reactionsComments0 comments
Bladder Cancer and Mental HealthThis week I read a very disturbing report regarding urological cancers and suicide. The statistics that I read I found very distressing. It got me thinking about my own situation...Reactions0reactionsComments0 comments
A Very Uncertain FutureThere’s nothing more shocking than to be told you have cancer. My wife Melanie and I drove home in silence that morning, afraid to speak for fear of realizing this...Reactions0reactionsComments0 comments
Radical Cystectomy and Sex: A Woman's PerspectiveI had a radical cystectomy just over a year ago. Prior to surgery, I was informed that the surgery would involve the removal of my bladder, cervix, appendix, ureter, part...Reactions0reactionsComments4 comments
Community Feedback: The Cystoscopy ExperienceA cystoscopy is a procedure that looks at the urinary system to diagnose and treat conditions of the bladder, urethra, and prostate. It takes a look inside the urethra and...Reactions0reactionsComments12 comments
TURBTs, PET Scans, and the Day of TruthAfter I found out I had bladder cancer, I was lucky enough to have private health insurance, so we arranged for me to go in and have a TURBT (have...Reactions0reactionsComments0 comments
6 Facts To Know About Bladder CancerSeveral members of the BladderCancer.net community shared that they knew nothing about bladder cancer until after they were diagnosed. We found that this is a common experience among people living...Reactions0reactionsComments20 comments
The JourneyBladder cancer doesn’t care about boundaries. Doesn’t matter what street, town, city, state or country you live in. It doesn’t care about trade agreements or political persuasion. It will attack...Reactions0reactionsComments4 comments
Cupcakes, Prosecco, and Bladder CancerI laid on the hospital couch, looking at the screen during my cystoscopy thinking, “What on earth is that?” My mind was all muddled; I had to close and reopen...Reactions0reactionsComments0 comments