BCG treatment
Hi Everyone,
I wanted to reach out for some advice and insight regarding my recent treatment for high-grade T1 bladder cancer. I was diagnosed in February 2023, and after a TURBT procedure to remove two tumors, I underwent a second TURBT that showed no further tumors. Following that, I began BCG treatments as recommended.
I completed the initial 6-week BCG treatment, then had two additional rounds of maintenance (3 treatments each time). However, during my recent cystoscopy, I was informed that my treatment is now considered complete due to the current national shortage of BCG.
While I understand the situation, I’m feeling uncertain and a bit nervous about the "wait and watch" approach that was suggested. I’m concerned about whether my treatment is truly complete or if there are any other steps I should consider moving forward.
I would greatly appreciate any advice, experiences, or suggestions you may have.
Thank you all for your support!
Non bladder invasive cancer in 2009. Was scheduled for 30 BCG treatment (yep) but BCG was stopped at the 9th treatment. I would bleed terribly after each treatment and they were afraid of a Systemic Tuberculin infection from the BCG.
All I remember at this late date, is I got Sick and was on antibiotics for 6 months.
Yearly Cystos, all negative, stopped at about the 12 year.
Been having repeat symptoms, less the blood, for about 3 weeks now. Self treating with 2 antibiotics for the past 4 days hoping its a bladder infection. If no improvement, will call Uro for an appt in 4-5 days.Thanks a lot for sharing your experience.
