Featurednew diagnosis male bladder needs adviceAdvice and info please. Yes I am seeing doctors and getting a second opinion but the best info comes from others that have been there. had cancer before elsewhere. I...Reactions 0 reactions Comments10 repliesTips & Advice
FeaturedBiopsy reports after bladder removalI'm a 67 year old male. I had my bladder removed 6 days ago due to type 2 muscle invasive bladder cancer. I now have an outside ostomy bag. He...Reactions 0 reactions Comments12 repliesDiagnosis
Active todayPost BCG I completed 6 weeks of induction intravescical BCG for CIS bladder, first look up cystoscopy scheduled for 2nd week of June , its been 10 days post my last BCG...Reactions 0 reactions Comments10 replies
Active yesterdaySurveillance CT Scan for My Chronic Lymphocytic Leukemia (CLL) Had an UnExpected ResultThe 5/11/22 CT Scan(got results the next day) confirmed my CLL is coming out of remission but that no treatment required at current time. Unfortunately the scan offered the following...Reactions 0 reactions Comments12 repliesDiagnosis
Active 2 days agocystoscope totals?T1 High grade 5 + years 3 x TURBT with BCG failed BCG 2 year mark + went on Gemzar.Been over 5 years and still get scopes every 3 months...Reactions 0 reactions Comments1 repliesCystosopy & Screening
Active 2 days agoToo Many Cystoscopes?I was diagnosed with non-invasive low grade bladder cancer in 2013. (one polyp) For the first two years after had cystoscopies 4X/year. , then 2 years at 2x/year for an...Reactions 0 reactions Comments5 replies
Active 3 days agoBCG questionI am being treated with BCG for my NMIBC Ta-T1, an approach I tried to learn about from my surgeon and through my own research. Two different nurses have done...Reactions 0 reactions Comments14 repliesTreatment
Active 4 days agoBCG side effects impact on successI recently had my third BCG installation for high grade NMIBC, following two turbts (tumors removed in first, no residual cancer in second). With this third treatment, I had slightly...Reactions 0 reactions Comments3 repliesSide Effects
Active 4 days agoRC next weekHaving a radical cystectomy with ID on Tuesday, April 26, 2022 (UPMC Mercy in Pittsburgh). Had a biopsy in November 2021; follow up in December- cancer had returned, it was...Reactions 0 reactions Comments13 repliesSurgeryUrostomy
Active 4 days agoBlack specs in urineI do not have a diagnosis. Has anyone experienced black flakes in their urine? It started months ago maybe a year. It was only every few weeks. Then every week...Reactions 0 reactions Comments2 repliesAwareness
Active 4 days agoBCG Treatment QuestionI've been given options of BCG treatment or cystectomy for T1 high grade. I'm waffling between them. I understand that if I choose BCG treatments, I need to add bleach...Reactions 0 reactions Comments13 repliesResearch & Clinical TrialsSide EffectsTips & AdviceTreatment
Active 5 days agoMy wafer leaksI am lucky to get three days from a put on. I heat the wafer before putting it on. What a mess. Any help would be appreciated. I empty the...Reactions 0 reactions Comments23 repliesCoping
