FeaturedQuestions about Ostomy and cystectomy in malesHello-my name is Ed and i have been a bladder cancer patient since July 2007. I have had as of today, sixteen TURBT surgeries, BCG treatments( 28 over a three-year...Reactions 0 reactions Comments6 repliesUrostomy
FeaturedActive yesterdayNewly diagnosed bladder cancer. Hello everyone. I never thought I would be joining a cancer forum at 40. I have never had any surgery or medical issues in my life. About 8 months ago...Reactions 0 reactions Comments7 repliesCystosopy & ScreeningFriends & FamilyDiagnosis
Active todayFISH testing for bladder cancerI got a positive FISH test in December. Dr. ordered another FISH, cystoscopy and CT scans. All were negative. Fast forward to July. I got another positive FISH test. I...Reactions 0 reactions Comments6 replies
Active todayMy Husband Wants to Keep His Bladder At All CostsHello there community. My name is Jennifer and my husband was diagnosed with Stage 2, high grade, muscle invasive bladder cancer as of April, 2021. He had the muscle invasive...Reactions 0 reactions Comments6 repliesTips & AdviceSurgeryNeobladder
Active 3 days agoHave you named your stoma?Has naming your stoma helped you in your bladder cancer journey? Share your stoma's name below and how you chose it...Reactions 0 reactions Comments8 replies
Active 3 days agoBlood in urine again .. has cancer come backI am a 77 year old female and I was diagnosed with BC eighteen months ago twice i had a tumour T3 removed and then 6 weeks basic BCG treatments...Reactions 0 reactions Comments14 repliesCopingCystosopy & ScreeningNeobladderNewly DiagnosedTips & Advice
Active 6 days agoBCG DosesI recently saw a discussion on Facebook that mentioned that the dose that several patients received at their treatment facilities was based on how many patients were scheduled for BCG...Reactions 0 reactions Comments3 repliesAwarenessHealthcare TeamTreatment
Active 6 days agoFinancial CostsI’ve just been diagnosed with stage 2 Bladder cancer and have been told my bladder needs to be removed. I’ve chosen to go with the pouch. I’m on Medicare and...Reactions 0 reactions Comments6 repliesCost
Active 6 days agoAm I being paranoid?I hope someone could ease my mind. I have T1 grade 3 BC. So far this journey scares me to death. Due to bad medical care the first 6 months...Reactions 0 reactions Comments11 repliesSymptoms
Active 7 days agoWeight Management During RecoveryI have been thin my entire life. No, that is not a brag. It is just a fact of my life. I am often told how lucky I am. It...Reactions 0 reactions Comments7 repliesCopingMental HealthDepression
FeaturedWhat are your tips for finding a good urologist?Share your tips with fellow community members looking for a bladder cancer-specific urologist. If you haven’t found a good one, what challenges have you faced...Reactions 0 reactions Comments2 replies
