caret icon Back to all discussions

NED prior to RC

Hello Everyone!
I'm new to the forum. Firstly, I want to thank you each for sharing your experience & tips. I'm relatively new on the BC path. I'm 59yro and sole caregiver. Until this year I lived a blessed active healthy life, and I still feel relatively fortunate. Jan2023 I was diagnosed with MIBC stage2, no evidence outside the bladder but the tumor did nick into bladder muscle.
After TURBT & 3rounds of cisplatin chemo(via port), my CTUrogram results reported NED. Grateful for good news! Amen. Now I'm mentally preparing for next steps which is still RC.
Any words of advice?

Also does anyone use special at home urine a screening?

May joy reveal in each day!

  1. Hi Welcome to our community! I am so glad to hear your results were so positive. I wanted to send over an article from one of our advocates about RC, I hope this is helpful for you: https://bladdercancer.net/living/ileal-conduit-myths. I am hoping our community will respond with their recommendations for home urine screening. We are here for you and you are welcome to share or vent when ever you need. Jill, bladdercancer.net team

    Please read our rules before posting.