Talk to Someone with a Neobladder
From our inbox: I am facing the probability of bladder removal in the coming months. I have done much research on the 2 possible means of reconstruction.
I would very much like to speak or communicate with people who have had the neobladder as I have many questions.
Raising hand and raising h*ll!
7 years a neobladder owner. Very happy with my choice. Happy to answer any and all questions. One thing you'll learn with bladder cancer - you lose a lot of inhibitions with all the poking and prodding you'll go through on this journey.
Kind of an important note: there are very different "average outcomes" depending on male/female - or so I've heard. Make sure you get input from both sides of the XX, XY fence.
I just was diagnosed 3 weeks ago and will be having neobladder surgery in 2 weeks . . . I have so many questions . . . What is recovery like? . . . How long is recovery? When can you start doing things . . . Are sex and intimacy still on the table? . . . I am so full of anxiety and dread . . .
I just now saw this notice. I assume you've had the procedure by now. I hope yours went as well as mine did in 2011. I don't know how to get you my contact info.
