New & Scared

Hi I had a Turbt just over two months ago I was in hospital over night. The day I came out I went to see Mamma Mia stage production I felt fine just needed to go to the toilet a bit more often and couldn’t risk holding on. I didn’t do any lifting but every day life was normal. I was really scared too it’s natural and no matter how many people tell you not to worry you do. Mine was a 1-2 cm non muscle invasive tumour it was aggressive I am now undergoing BCG just had week 3. I had a CT scan before my Turbt and before I went into surgery I saw the surgeon and the hardest question I have ever had to ask was had it spread and I knew then I could deal with anything else knowing it hadn’t. I look on it now they’ve removed the cancer at the moment I’m cancer free and they are treating me to try and make sure it doesn’t come back. I look forward not back or sideways deal with what’s in front of you. They’ve told you yours is small go with that thought. Wishing you all the best let us know how you get on.

Hi I only had Spasms whilst the catheter was in over night once that was removed they subsided. When they remove the tumour they cauterise the area which I didn’t bleed hardly at all they then put in chemo for one hour which was straight after surgery. Less than 24 hours after surgery I wouldn’t of known I had surgery except I was tired because you don’t sleep much on hospital wards.
When they told me it was 1-2 cm it was when they put the camera in so it would of been what they could see and I never asked afterwards.

@Tracyann - Great news that you are NED. You have a great attitude to beat this. thank you for sharing your story and keep vigilant with regular testing please as high grade may rear its ugly head again. My best to you. Linda Urbanski ( moderator, Bladdercancer.net team member)

@Truffles2020 - Take a breath and know that your TURBT will provide more information as to what you may be dealing with. Try not to get ahead of yourself and worry about what may not be. I had 2 TURBT's after tumors were discovered. I did not find either procedure difficult. I came home with a catheter that was removed after a couple days. The most important thing is to make sure you keep well hydrated afterwards. To be honest, we should always be well hydrated as our body needs water always. I was tired after my TURBT but went on with my usual day without any problems. Make sure that your doctors speak to whomever you have with you and tell that person how the procedure went and what the follow up may be. Don't get ahead of yourself as there is not really any value at this time other than to create unnecessary stress for you. When you have a specific diagnosis, your doctor should discuss that with you along with options if necessary. I know that you want answers now but that is what the TURBT is for. Just know that whatever it is, you will get through it and we are here to support you. Keep us updated on how things go. My best Linda Urbanski ( moderator, Bladdercancer.net team member)