You Too Can Ooze Ostomy Confidence

Do you remember hearing the words ostomy, stoma, urostomy, or ileal conduit? I can bet many of you, like me, had never heard of them or knew what they were. I had a vague idea of a colostomy but had never heard of a urostomy. Initially, if a bladder cancer journey is leading you to a possible Radical Cystectomy— an operation where the bladder is removed, and a urinary diversion is required— then it is very likely your focus is initially on the specifics of your bladder cancer. Questions like: What stage is the cancer, what are some alternative treatments available, and if surgery is in the future, what will it involve? If you decide to remove the bladder, your thoughts may shift to what life will be like after.

Take the time you need

Your healthcare team may bring up the option of having an ostomy. It's important to remember that ostomy surgery can be life-changing but doesn't have to alter who you are. In many cases, an ostomy can save your life and allow you to continue living as you did before. Please take the time to understand how you feel about your ostomy emotionally, and be sure to discuss your feelings with close friends or family. It's okay to give yourself the time you need to emotionally adjust to having an ostomy while your remarkable body recovers physically from the surgery.

Find your tribe

I understand that it may be difficult adjusting to life with an ostomy. Please remember the following: "When you feel ready, try to engage with people and explore familiar and new places; this can help boost your confidence. Having an ostomy, you can accomplish many milestones, such as your first café visit, meeting a friend, or shopping. Start by taking small steps and short outings. You can also find comfort and support by connecting online through social media. Numerous inspiring individuals demonstrate that you can embrace and love yourself and that the possibilities are endless if you believe in yourself. You might think that you are alone in this, but I assure you, you are not. If you were to ask around at church or work, you would be surprised to find many others with an ostomy or a family member living with one, even though you might not have realized it."

I have had the privilege of supporting many individuals before and after their ostomy surgeries. I understand that their biggest concerns are how their bodies will change, look and what they can wear. "Can you still wear swimwear?" Absolutely, you can. You can continue wearing the swimwear you did before. You can show your ostomy bag or use an ostomy bag cover, which you can easily purchase online.
Additionally, men can opt for higher-waisted shorts, while women can choose bikinis or tankinis. "People will notice my ostomy bag under my clothes." – I want to assure you that most people can continue wearing the same clothing type. However, if you are worried about it being visible (although it's doubtful that others will notice), you can select looser-fitting trousers or tops for women and longer shirts for men.

Believe in yourself

I understand that being body-confident with an ostomy is not always easy. After almost six years, I know that some days can be tough. However, I try to wake up every day feeling grateful for the gift of life. Each new day is an opportunity to feel empowered and to empower others with ostomies. It's a chance to share on social media and support struggling others. I encourage you to take that leap of faith and believe in yourself. I truly believe you can live a fulfilling life with confidence despite challenges. You are not alone in this journey.