My Diagnosis Story: Strange SymptomsBeing a young woman diagnosed with bladder cancer, the thing I'm most often asked is, "How did it happen?". I've told my diagnosis story many times, and each time I...Reactions0reactionsComments6 comments
Why We Need Awareness MonthSocial media has changed our lives in many ways. Many for the good but, of course, in other ways less positively. On the one hand, it is a great way...Reactions0reactionsComments0 comments
Bladder Cancer Awareness - How Do We Spread the Word?Most of us can probably say that we had never heard of bladder cancer before being diagnosed. Why is that? We constantly hear about other forms of cancer - breast...Reactions0reactionsComments0 comments
Part 2 of Bladder ExamWell, today I received my transurethral resection of a bladder tumor (TURBT). IV went in easy, they briefed me and then I got the good stuff. I don't remember anything...Reactions0reactionsComments28 comments
Primary Adenocarcinoma of the BladderHi, I am submitting this story for my hubby, Paul who was diagnosed in the fall of 2021 with Primary urinary Bladder Adenocarcinoma (PBA). He was 48 yrs old at...Reactions0reactionsComments4 comments
Electric Blanket Giveaway! (now closed)The Electric Blanket Giveaway is now closed. Thank you for your interest! May is bladder cancer awareness month! We are honoring bladder cancer awareness month with a giveaway. One lucky...Reactions0reactionsComments0 comments
Bladder Cancer Awareness Month: Our Bladders Matter!May is Bladder Cancer Awareness Month! This year during awareness month, we are highlighting the importance of advocating for yourself and the journey of becoming an empowered patient. Bladder cancer...Reactions0reactionsComments0 comments
Community Views: Support From Family and Friends During Bladder CancerBladder cancer can be an overwhelming journey. Having support during bladder cancer treatment eases the burden. Sometimes, loved ones may not know the best ways to offer support. They are...Reactions0reactionsComments0 comments
Losing More Than Just a MonarchToday has been a strange day. A day as a nation in the UK we will never forget. A day when we lost so much more than a figurehead or...Reactions0reactionsComments0 comments
Paramedics and UrostomiesOn January 8th, 2023, I was involved in an accident. Shielded by the car to my right as we turned left at an intersection after receiving the green arrow, I...Reactions0reactionsComments9 comments
Intimacy After CystectomyI am a sex-positive person. I think education and conversations surrounding sex and intimacy should be normal. I am even more passionate about these conversations being part of all the...Reactions0reactionsComments0 comments
Fallout From a Failed Chemo InstillationThe ride home from Mom's first chemo instillation was heavy. We had done everything within our power to prepare her for this day, but it felt like a failure of...Reactions0reactionsComments0 comments
Being BraveYou're so brave. I'm so inspired by you. You're doing so great. You are so strong - blah, blah, blah. I have heard all of this and pretty much every...Reactions0reactionsComments13 comments
Starting an In-Person Bladder Cancer Support GroupI was shocked when I was first diagnosed with bladder cancer in 2014, as are many others. Online sites were my salvation and certainly showed me that though this form...Reactions0reactionsComments0 comments
Radical IndeedAfter most of 2020 dealing with nuisance symptoms like urgency and producing small foreign objects when I, then a major symptom; About 12 times a day I was having what...Reactions0reactionsComments1 comments
My Dog Knew I Was SepticWe can all agree that our pets are very intuitive. They just seem to "know" when something is wrong and, in their own way, try to help. Early on in...Reactions0reactionsComments2 comments
Helping to Shape the Future for OstomatesI have to say. I often feel so privileged for the rewarding opportunities having been through a bladder cancer journey and becoming an ostomate has brought me. Of course, like...Reactions0reactionsComments0 comments
A Letter to Newly Diagnosed MeLet me start there. You are so beautiful and have an inner strength that will change lives, even if you don't know it yet. You have suffered in silence, with...Reactions0reactionsComments5 comments
Walking Back Into the WardAlmost 5 years after I left the ward where I was post-surgery, I walked back in here tonight. Tonight, as the workday was drawing to a close for many Glaswegians...Reactions0reactionsComments0 comments
Who Is Nurse Anita?Nurse Anita, aka Anita Nurse, aka the Stoma Whisperer or the Stoma Doula. I'm all of those things, but mostly I consider myself a healer. I just happen to have...Reactions0reactionsComments2 comments
