My Diagnosis Story: A Wild Visit to the Emergency RoomBy the time I got to the front desk and said, "Hey, my hip hurts," my husband was calling me. "Did you just leave the house?"... "Yes"... "Did you tell...reactions1comment
Patient as a PatientBeing a patient - it is not a title we choose or something we choose to enter into. It is forced upon us when our amazing human body stops working...reactionscomments
Sharing The Word: Raising Awareness of Bladder CancerToday was a good day. Through a UK Bladder Cancer Charity, I was approached to do a talk, and that talk was today. It was to talk to a patient...reactions1comment
My Diagnosis Story: Strange SymptomsBeing a young woman diagnosed with bladder cancer, the thing I'm most often asked is, "How did it happen?". I've told my diagnosis story many times, and each time I...reactions6comments
Why We Need Awareness MonthSocial media has changed our lives in many ways. Many for the good but, of course, in other ways less positively. On the one hand, it is a great way...reactionscomments
Bladder Cancer Awareness - How Do We Spread the Word?Most of us can probably say that we had never heard of bladder cancer before being diagnosed. Why is that? We constantly hear about other forms of cancer - breast...reactionscomments
Part 2 of Bladder ExamWell, today I received my transurethral resection of a bladder tumor (TURBT). IV went in easy, they briefed me and then I got the good stuff. I don't remember anything...reactions28comments
Primary Adenocarcinoma of the BladderHi, I am submitting this story for my hubby, Paul who was diagnosed in the fall of 2021 with Primary urinary Bladder Adenocarcinoma (PBA). He was 48 yrs old at...reactions4comments
Electric Blanket Giveaway! (now closed)The Electric Blanket Giveaway is now closed. Thank you for your interest! May is bladder cancer awareness month! We are honoring bladder cancer awareness month with a giveaway. One lucky...reactionscomments
Bladder Cancer Awareness Month: Our Bladders Matter!May is Bladder Cancer Awareness Month! This year during awareness month, we are highlighting the importance of advocating for yourself and the journey of becoming an empowered patient. Bladder cancer...reactionscomments
Community Views: Support From Family and Friends During Bladder CancerBladder cancer can be an overwhelming journey. Having support during bladder cancer treatment eases the burden. Sometimes, loved ones may not know the best ways to offer support. They are...reactionscomments
Losing More Than Just a MonarchToday has been a strange day. A day as a nation in the UK we will never forget. A day when we lost so much more than a figurehead or...reactionscomments
Paramedics and UrostomiesOn January 8th, 2023, I was involved in an accident. Shielded by the car to my right as we turned left at an intersection after receiving the green arrow, I...reactions9comments
Intimacy After CystectomyI am a sex-positive person. I think education and conversations surrounding sex and intimacy should be normal. I am even more passionate about these conversations being part of all the...reactionscomments
Fallout From a Failed Chemo InstillationThe ride home from Mom's first chemo instillation was heavy. We had done everything within our power to prepare her for this day, but it felt like a failure of...reactionscomments
Being BraveYou're so brave. I'm so inspired by you. You're doing so great. You are so strong - blah, blah, blah. I have heard all of this and pretty much every...reactions13comments
Starting an In-Person Bladder Cancer Support GroupI was shocked when I was first diagnosed with bladder cancer in 2014, as are many others. Online sites were my salvation and certainly showed me that though this form...reactionscomments
Radical IndeedAfter most of 2020 dealing with nuisance symptoms like urgency and producing small foreign objects when I, then a major symptom; About 12 times a day I was having what...reactions1comment
My Dog Knew I Was SepticWe can all agree that our pets are very intuitive. They just seem to "know" when something is wrong and, in their own way, try to help. Early on in...reactions4comments
Helping to Shape the Future for OstomatesI have to say. I often feel so privileged for the rewarding opportunities having been through a bladder cancer journey and becoming an ostomate has brought me. Of course, like...reactionscomments
