Weight Struggles With Bladder CancerMore often we tend to hear of people struggling to keep weight on while going through cancer treatment. Chemo and radiation can cause lack of appetite, nausea, and fatigue, all...reactionscomments
The Inner Turmoil of Being a Bladder Cancer SurvivorI’ve heard many people talk about “survivor's guilt,” but I never really experienced it - that was until just recently. Earlier this year, I found out that a very dear...reactions2comments
BladderCancer.net is 3 Years Old!Three years ago, BladderCancer.net was born, creating a unique online space for people living with and caring for bladder cancer to connect. Since then, we have published over 700 articles...reactionscomments
The Lowdown on MVAC (Part 1)About 4 and a half months into my diagnosis, I had my first office visit with my oncologist. I met him a few times while I was an inpatient after...reactions2comments
An Immunotherapy Clinical Trial as My First-line TreatmentIf you are familiar with my cancer story, you know that it has been ANYTHING but typical. From my age, stage of diagnosis, recovery story, even my treatment plan. Nothing...reactions1comment
Experiencing Disappointment During COVID-19In a previous article, I talked about the changes in support meetings through this pandemic. The topic of disappointment, I believe, goes hand in hand with this. As I've shared...reactionscomments
Why I Stopped Waiting to Recover from Neobladder SurgerySeven years ago, I was faced with the choice of which urinary diversion to have. IP? Neobladder? Pouch? Each option has different surgical complexities, different recovery issues, and different life-long...reactions14comments
Bladder Cancer Connections via the Worldwide WebWhen I was diagnosed over 4 years ago at age 40, I had no clue that bladder cancer was even a thing. I was floored. Immediately I began seeking out...reactions1comment
Active with an Ostomy: My Experience and Tips on Getting StartedBefore the symptoms of bladder cancer were revealed in my body, I led an active life and was getting in shape again. I had already experienced hardships and medical stress...reactions4comments
What to Buy and What to Try for Your Upcoming RC/ICWe all enter a bladder cancer removal procedure from differing ages, genders, a variety of pre-surgery treatments, and medical advice. I found the below info helpful, but I was in my...reactions1comment
Those First Few Months of My Small Cell Bladder CancerFor those of you who don’t know me, my name is Anita, and in 2016, I was diagnosed with small cell bladder cancer. I remember feeling utterly dumbstruck, scared, frightened...reactions1comment
Living with an Ileal ConduitMy journey with cancer began in the summer of 2019, when I began having bright red blood in my urine. As an older woman, I had the usual bladder urgency...reactions11comments
4 Things I Wish I Knew Before My Radical CystectomyWhen I met with my urology oncology surgeon the first time, a friend who is a nurse went with me. I had a list of questions and she went over...reactions9comments
Calling Time on Your BladderI sometimes wonder if I’m standing alone when it comes to the choice of removing your bladder to avoid any chance of your cancer spreading. I have huge respect for...reactions21comments
Bladder Cancer Comic: HydratedBladder cancer can make you hyper-aware of your body and your habits. You might decide to start drinking more water – only to then worry about your more frequent urination!...reactions2comments
Tips for Finding a Therapist Who Fits Your NeedsIn response to another piece I wrote, the question was asked, "How did you find a therapist?" This is a great question, and gave me some pause to think about...reactions2comments
4 Ways to Be a #GratefulPatient with Bladder CancerSeptember 7th was #GratefulPatient Day. Going through bladder cancer is, as my oncologist puts it, not all puppy dogs, rainbows, and unicorns. That's for darn sure, right?! Silver linings are...reactions5comments
Mucus: File Under "Things That Make You Go Ugh"If you have a neobladder, one of the new “normal” things the doctors will alert you to is “mucus” in your urine. My basic understanding is that because the neobladder...reactions15comments
The Benefits of TherapyI realized while reading my initial article on finding a therapist that I may have missed a few important talking points. We live in a time where medication and physical...reactionscomments
Grating Phrases and Jargon That Confuse (and Sometimes Demoralize) PatientsI was a caregiver for a year to a spouse with advanced bladder cancer. In the six years since his death, I have worked as a bladder cancer patient advocate...reactionscomments