World Cancer Day 2021: What We Wish Others KnewOver the years, we have had countless conversations in our community about what we wish people knew about life with cancer. We have talked about the things that others so...Reactions0reactionsComments2 comments
Prioritizing My Mental HealthFighting cancer is usually seen as a physical fight. Your body is being attacked and through medicine, surgery, and sometimes brute strength, you fight back against the disease. Medical teams...Reactions0reactionsComments1 comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...Reactions0reactionsComments1 comments
It Wasn't Just Menstrual CrampsIn late spring of 2019, I knew something was up. I was experiencing what I thought were heavy periods and spotting along with fatigue and just constant discomfort that ranged...Reactions0reactionsComments5 comments
The Invisibility and Stigma of Chronic PainPain can be classified as an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain cannot be immediately seen. Because of this, it is possible...Reactions0reactionsComments1 comments
When Bladder Cancer Isn't Just OverAt the end of this month, February 2021, I am officially 4 years from the end of my treatments. I have not been in active treatment for FOUR YEARS. Sometimes...Reactions0reactionsComments4 comments
Finding Credible Health Information OnlineThere’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every...Reactions0reactionsComments1 comments
Experiencing Chemo for the First Time with a UrostomyNothing about my bladder cancer journey has been typical. Most patients, at least here in the US from what I've read, receive chemo first and then have their radical cystectomy...Reactions0reactionsComments5 comments
The Worst Phone Call I Ever MadeSo many aspects of the initial part of my cancer journey are blurry. There was too much pain, too much confusion, and way too much medication to remember things fully...Reactions0reactionsComments2 comments
Funny Ostomy QuestionsOstomies are strange things. I’ll admit when told I would be getting a urostomy, I had to immediately google what it was and I was dumbstruck. A piece of intestine...Reactions0reactionsComments3 comments
Being Your Own AdvocatePatient advocacy is a cause near and dear to my heart. This task is most often handed to the patient’s caregiver, meaning their spouse, close family, or parents, sometimes even...Reactions0reactionsComments1 comments
Medical PTSD In People With CancerFor many people, cancer is the worst fear of all. Often, just the word cancer leads people to imagine hair loss, chemotherapy, nausea, and other physical symptoms. However, the physical...Reactions0reactionsComments0 comments
Meet Jeri & Learn About Life With an Indiana PouchThose who undergo bladder removal surgery (a radical cystectomy) to treat their bladder cancer are faced with another decision: which type of urinary diversion should they choose? From the ileal...Reactions0reactionsComments0 comments
One Step Forward, Two Steps BackNo, this is not a case of opposites attracting. (For those who may not know, reference to Paula Abdul's 1988 hit "Opposites Attract.") Today, we're talking about follow-up appointments. When...Reactions0reactionsComments1 comments
Bladder Cancer Must-HavesI participate in a lot of online circles for bladder cancer and the topic of what comfort items are must-haves comes up quite a bit. What to take to the...Reactions0reactionsComments0 comments
What Is It Like Being on Immunotherapy?Immunotherapy feels like the new kid on the block when it comes to cancer treatment. And in the world of medicine, it really is. Keytruda was approved for use in...Reactions0reactionsComments0 comments
Dealing with Unsupportive People During Your Cancer JourneyHaving a team of supporters during your cancer journey is extremely beneficial to your physical and mental health. As I stated in a prior article, building this team is of...Reactions0reactionsComments1 comments
Weight Struggles With Bladder CancerMore often we tend to hear of people struggling to keep weight on while going through cancer treatment. Chemo and radiation can cause lack of appetite, nausea, and fatigue, all...Reactions0reactionsComments0 comments
The Inner Turmoil of Being a Bladder Cancer SurvivorI’ve heard many people talk about “survivor's guilt,” but I never really experienced it - that was until just recently. Earlier this year, I found out that a very dear...Reactions0reactionsComments2 comments
BladderCancer.net is 3 Years Old!Three years ago, BladderCancer.net was born, creating a unique online space for people living with and caring for bladder cancer to connect. Since then, we have published over 700 articles...Reactions0reactionsComments0 comments