I Don’t Sleep with a Night DrainI don’t sleep with a night drain system. I know that sounds crazy, but hear me out. My radical cystectomy was in August 2019, by November I was sleep deprived...reactionscomments
Liz's Bladder Cancer Story: Misdiagnosed at the Emergency RoomThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. We talked to Liz who shares how she was diagnosed with bladder cancer. At around age 38...reactions2comments
Thankful On a Bad DayAs the Schuyler sisters said in Hamilton. “Look around, look around, how lucky we are to be alive right now.” I am lucky to be alive. I am grateful for...reactionscomments
Honoring All Who Have Been Touched by CancerOn National Cancer Survivors Day, observed each year on the first Sunday in June, we honor and celebrate anyone whose life has been changed by a cancer diagnosis. We stand...reactionscomments
Bladder Cancer Comic: COVID-19Many bladder cancer survivors have said that the fear of a recurrence is always at the back of their minds. During follow-up appointments, that fear comes back to the surface...reactionscomments
To Port or Not to Port?For bladder cancer patients whose cancer has moved beyond the bladder or is not responding to other treatments, chemo and radiation are given. Intravenous chemotherapy can be brutal on the...reactionscomments
Wool Socks and the Art of Self-CareGrey wool socks. Red toe caps and heel caps. A wide red band at the top. As long as I can remember, these are the socks my father has worn...reactionscomments
Should Our Active Surveillance Standards After Cystectomy Be Changed?I have wondered often if we are approaching bladder cancer surveillance in the right way for patients who have had their bladders removed (or otherwise essentially been deemed free of...reactionscomments
What Bladder Cancer Taught MeCancer is almost always life-changing in some way, and a part of that is how it reshapes how we think. With cancer come lessons. To find out what you have...reactionscomments
Going Public with My CancerI thought long and hard about what I wanted to do with my cancer story after I was diagnosed. I remember laying in my hospital bed at Emory a day...reactionscomments
Thank You, Cancer!Dear Cancer, It may seem strange that I am writing to you again, especially since the last time I was broken-hearted, emotional, and depressed. This time it is different. This...reactions7comments
Losing More Than Just Your BladderI was laying in my hospital bed, curled in a ball moaning from the incredible pain radiating through my left hip and down my leg. Four different IVs were hooked...reactions1comment
Organizing Your Day (and Your Space) At Home to Help You Feel GoodMany us are spending a lot of time at home. The last time I spent so much time at home was in 2013 and 2014 when my first husband had...reactions2comments
One White Pine: Building Spaces for Living & HealingProfessor and landscape architect Daniel Winterbottom has been designing and building therapeutic gardens for over 20 years. Here, he shares his unique viewpoint on the power of nature to heal...reactionscomments
In Defense of CryingI think there is an expectation that cancer fighters and survivors are these incredibly strong and resolute beings. They walk through life with heads held high, eyes fixed on the...reactions2comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for...reactionscomments
How to Cope When Bad News Keeps Piling UpWhen my husband, Ahmad, was diagnosed with metastatic bladder cancer, it seemed the bad news just kept coming. Every time I felt I had gained my footing, some other piece...reactionscomments
Just Sit With MePeople mean well. They are just trying to be positive and encouraging. Their words of solace and encouragement and compassion come from a wonderful place. They speak out of their...reactionscomments
A Step BackwardAfter the removal of my bladder tumor, I began a regimen of regular cystoscopies. In the beginning, I went every three months. For the first year, I would ride a...reactions5comments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...reactionscomments