Living with an Incurable CancerFor those of you who don't know me, Hello, my name is Anita and in 2016, I had the worst news ever. I was diagnosed with a neuroendocrine, small cell bladder...Reactions0reactionsComments4 comments
Investigating Possible Causes of Fatigue for Cancer PatientsAs a person who is in remission from bladder cancer, I find that even now two years later I can still suffer from quite severe fatigue. I also seem to...Reactions0reactionsComments0 comments
Cancer with an Anxiety DisorderGetting a cancer diagnosis is never easy. But when you have cancer and an anxiety disorder, you tend to jump to the worst possible conclusions. Illustrations by Lucius Wisniewski for...Reactions0reactionsComments0 comments
More Lessons I Have LearnedSee Part 1: Lessons I Have Learned to read about some more of the takeaways Anita shares from her experiences with bladder cancer. There are many things people will say...Reactions0reactionsComments8 comments
The Pros and Cons of the CystectomyYou hear the news and it feels so black and white. When doctors tell you it’s time to remove your bladder, it’s hard not to be afraid. Losing an organ...Reactions0reactionsComments0 comments
Bladder Cancer Anxieties: Financial StressIn this series, we discuss causes of anxiety for those facing a physical illness like bladder cancer and its side effects. Phrases in quotes are the words of our community...Reactions0reactionsComments0 comments
Changes Post-Operation with a NeobladderYou came through surgery okay. Your recovery has been smooth, no major complications. You’re back to your daily routine, working, teaching, taking care of the kids or enjoying your retirement...Reactions0reactionsComments2 comments
Superwoman! I Feel GOOD!It has been around four weeks (this is the 4th week, although it feels longer) since I addressed my diet and upped the physical exercise. I think, overall, it is...Reactions0reactionsComments0 comments
Let’s Talk About SexLet’s talk about sex. That’s right, sex. Before my bladder surgery, one of the biggest fears I had was that I would emerge an old man. I was 66 years...Reactions0reactionsComments2 comments
How Anxiety Affects the Bladder Cancer CommunityThe effects of cancer extend so much further than just the body. This disease can wreak absolute havoc on mental wellbeing. Anxiety, especially the nerves that arise prior to annual...Reactions0reactionsComments0 comments
The Mediterranean Diet: What is It & Will It Help Me? The Mediterranean diet has all the basic components of "healthy eating." It even allows for the odd cheeky glass of red wine, so what's not to like? If like...Reactions0reactionsComments0 comments
Protecting Against a Future UTIUTI stands for urinary tract infection. Typically with this type of infection, there can be pain, burning with urination, possibly blood in urine, a frequency to urinate, cloudy, dark, or strange...Reactions0reactionsComments0 comments
Lessons I Have LearnedI have been living with terminal bladder cancer for nearly three years now. I feel so incredibly fortunate to have had this extra time; this is something we didn't think...Reactions0reactionsComments5 comments
Public Restrooms: The Dilemma of Using "Disabled" ToiletsPrior to having my bladder removed, I never gave "disabled" toilets a second thought. In fact, I would walk past them and assume that they were for use only by...Reactions0reactionsComments4 comments
How I Handled Menopause and HRTHormone replacement therapy (HRT) isn't suitable for everyone, and there are some huge risks. One of them being that you may develop breast cancer. That didn't and still doesn't worry...Reactions0reactionsComments2 comments
Why Patient Advocacy Matters and Why You Should Participate If You CanSince losing my first husband (Ahmad) to bladder cancer in 2014, I have gotten involved in patient advocacy related to bladder cancer. After he was diagnosed and during the course...Reactions0reactionsComments0 comments
What NOT to Say to Someone with Bladder Cancer!Over the last three years, I think I have heard every kind of reaction to my "I have terminal bladder cancer." Let's face it, people are idiots who don't always use...Reactions0reactionsComments8 comments
UTI: Run, Don't Walk To Your DoctorHello, everyone. I have been missing in action for approximately 5 weeks. The reason and subsequent actions will probably blow your mind. I have never been a person to have a...Reactions0reactionsComments0 comments
Second Annual Checkup Looms: Does it Ever Get Any Easier?I’ve been supporting and advocating for bladder cancer patients for over a year now, after I myself went through bladder cancer in 2016-2017. My experience resulting in a Radical Cystectomy...Reactions0reactionsComments0 comments
Communicating with Your Doctor About the Sexual Impact of TreatmentChanges in sexual functioning are common side effects of various forms of bladder cancer treatment. Some of these side effects may include decreased sex drive, erectile dysfunction, problems with arousal...Reactions0reactionsComments0 comments