Public Restrooms: The Dilemma of Using "Disabled" ToiletsPrior to having my bladder removed, I never gave "disabled" toilets a second thought. In fact, I would walk past them and assume that they were for use only by...reactions4comments
How I Handled Menopause and HRTHormone replacement therapy (HRT) isn't suitable for everyone, and there are some huge risks. One of them being that you may develop breast cancer. That didn't and still doesn't worry...reactions2comments
Why Patient Advocacy Matters and Why You Should Participate If You CanSince losing my first husband (Ahmad) to bladder cancer in 2014, I have gotten involved in patient advocacy related to bladder cancer. After he was diagnosed and during the course...reactionscomments
What NOT to Say to Someone with Bladder Cancer!Over the last three years, I think I have heard every kind of reaction to my "I have terminal bladder cancer." Let's face it, people are idiots who don't always use...reactions8comments
UTI: Run, Don't Walk To Your DoctorHello, everyone. I have been missing in action for approximately 5 weeks. The reason and subsequent actions will probably blow your mind. I have never been a person to have a...reactionscomments
Second Annual Checkup Looms: Does it Ever Get Any Easier?I’ve been supporting and advocating for bladder cancer patients for over a year now, after I myself went through bladder cancer in 2016-2017. My experience resulting in a Radical Cystectomy...reactionscomments
Communicating with Your Doctor About the Sexual Impact of TreatmentChanges in sexual functioning are common side effects of various forms of bladder cancer treatment. Some of these side effects may include decreased sex drive, erectile dysfunction, problems with arousal...reactionscomments
A New Neobladder: Life Goes OnOnce I had the staples and all the drainage paraphernalia removed, I was ready to start living my “new” life again. I had a bladder that thought it was still...reactions2comments
Surgery & Recovery ComplicationsWhen it comes to surgery and recovery, there can be complications. And guess what? I couldn’t dodge the bullet. Discharged after seven days and sent home with three drainage bags...reactionscomments
Here's What Chemo Feels LikeWhen I first heard that I'd need chemotherapy to treat my bladder cancer, terrifying visions swam into my head. Knowing virtually nothing about cancer treatment, I pictured chemotherapy like it's...reactions1comment
Is Bladder Cancer Contagious?I came across a few blogs, articles, and other writing that were focused on one topic of bladder cancer. Many people wanted to know if cancer, specifically bladder cancer, was...reactions1comment
Dr. GoogleMaybe it's a generational thing (I'm a Millennial), but when I get news that's confusing or scary, my first urge is to research it extensively on the Internet. My urologist...reactionscomments
Advice to Your Past SelfLife with bladder cancer can take unexpected twists and turns. In many cases, your story may develop into something completely different than what you had envisioned at the time of...reactionscomments
Recovering from Surgery: Roll with the PunchesThe hardest part about recovering from surgery, for me, was allowing my body to heal. I wanted to be better yesterday; I don’t have a lot of patience. But the...reactionscomments
Bladder Cancer and Its Effect on My Body ImageI’ve had my stoma, “my Winnie”, coming up on two years now. Having my stoma hasn’t stopped me from doing anything: traveling, spa days, swimming, etc. In fact, I have...reactionscomments
Can Diet Help with Pain & Inflammation?I am a 48-year-old female. I have/had a Neuroendocrine, small cell Bladder tumor which had spread to my lymph nodes, liver, hip, and arm bones. I have had palliative chemotherapy...reactionscomments
The “New Normal”: Life with a StomaI was diagnosed with a high grade, aggressive bladder tumor. This was totally unexpected, although I had known for quite some time that something “wasn’t quite right”. What it was...reactions2comments
Urine AnxietyIt sounds silly, but hear me out: Having bladder cancer has given me a renewed appreciation for my health and my mortality, sure. But it's also given me a phobia...reactions8comments
My Post-Operation Hospital StayThe hospital wants to get you home as soon as possible following surgery. The first 24 hours was a blur, I was aware that a nurse was in the room...reactionscomments
Making Changes to Diet and LifestyleWe often read how important diet can be to contribute to a healthier life, and this can become even more relevant after being diagnosed with cancer. I can honestly say...reactions3comments