When Intravesical Chemotherapy Takes Your Breath AwayThe end of March 2021 began a whirlwind that consumed my life. I didn't realize at the time, but we were entering...reactions1comment
UroAmp: A New Predictive Tool for Bladder CancerConvergent Genomics has developed a urine test called UroAmp for bladder cancer. UroAmp can give doctors detailed genetic information about bladder cancer...reactions3comments
A Demonstration of True FriendshipAfter my radical cystectomy (RC), I experienced quite a few complications and spent a significant amount of time in a rehab facility...reactions4comments
Stress and Vitamin DeficiencyAfter my radical cystectomy, I experienced severe hair loss. Although I did not end up bald, my medical team estimates I lost...reactions1comment
The Power of WordsAs a family we’ve always been a pretty positive bunch. Growing up, our house was always one filled with laughter and jokes...reactions1comment
A Surprise (and Surprising) 60thRecently, my mom celebrated her 60th birthday. And for someone who had less than a 50/50 chance of survival a few years...reactions1comment
The 14th Annual North Carolina Bladder Cancer RetreatWe all need support and to not feel alone. When I read of cancer patients who feel alone because they are not...reactions8comments
Packing for a Cruise With an OstomyI am finally going on my first big trip since being diagnosed with bladder cancer - a 1-week cruise to the Virgin...reactions2comments
What Is Time Toxicity in Advanced Bladder Cancer?Treatment for advanced bladder cancer may provide survival benefits of several months to a year. During treatment decisions, these benefits must be...reactionscomments
Finding Peace in the DistanceA cancer diagnosis is never easy. It changes everything. Upon hearing the words and realizing, "I have cancer," it can feel as...reactionscomments
What Can You Do Without a WOCN Near YouHaving been an ostomate for 6 and a half years now and very active in the bladder cancer and ostomy communities, I...reactionscomments
Beach Bag ReadyAs winter turns to spring and thoughts turn from spring to summer, many of us will start to think of vacations. If...reactions6comments
1 and a Half Years Cancer FreeI am officially a year and a half cancer free and I really don't know how to feel. Part of me wants...reactions1comment
Why It's Important to Keep the Advocacy Wheels TurningMy bladder cancer journey began almost 6 years ago. I have developed and grown in this time - grown in many ways...reactionscomments
My Diagnosis Story: A Wild Visit to the Emergency RoomBy the time I got to the front desk and said, "Hey, my hip hurts," my husband was calling me. "Did you...reactions1comment
Patient as a PatientBeing a patient - it is not a title we choose or something we choose to enter into. It is forced upon...reactionscomments
When Your Mom is Stronger Than ChemotherapyAfter restarting Mom's intravesical chemotherapy, things seemed to go pretty smoothly, at least from my perspective. We had fallen into a kind...reactions5comments
Sharing The Word: Raising Awareness of Bladder CancerToday was a good day. Through a UK Bladder Cancer Charity, I was approached to do a talk, and that talk was...reactions1comment
My Diagnosis Story: Strange SymptomsBeing a young woman diagnosed with bladder cancer, the thing I'm most often asked is, "How did it happen?". I've told my...reactions6comments
The "Other Bladders"It's bladder cancer awareness month, and as you know: Our Bladders Matter! But what if it's not your bladder? Now, this isn't...reactions3comments
