Beach Bag ReadyAs winter turns to spring and thoughts turn from spring to summer, many of us will start to think of vacations. If you are new to life with an ostomy...Reactions0reactionsComments6 comments
1 and a Half Years Cancer FreeI am officially a year and a half cancer free and I really don't know how to feel. Part of me wants to jump for joy and celebrate every day...Reactions0reactionsComments1 comments
Why It's Important to Keep the Advocacy Wheels TurningMy bladder cancer journey began almost 6 years ago. I have developed and grown in this time - grown in many ways. Grown as a patient, grown as an advocate...Reactions0reactionsComments0 comments
My Diagnosis Story: A Wild Visit to the Emergency RoomBy the time I got to the front desk and said, "Hey, my hip hurts," my husband was calling me. "Did you just leave the house?"... "Yes"... "Did you tell...Reactions0reactionsComments1 comments
Patient as a PatientBeing a patient - it is not a title we choose or something we choose to enter into. It is forced upon us when our amazing human body stops working...Reactions0reactionsComments0 comments
When Your Mom is Stronger Than ChemotherapyAfter restarting Mom's intravesical chemotherapy, things seemed to go pretty smoothly, at least from my perspective. We had fallen into a kind of routine during those 7 weeks, and Mom...Reactions0reactionsComments5 comments
Sharing The Word: Raising Awareness of Bladder CancerToday was a good day. Through a UK Bladder Cancer Charity, I was approached to do a talk, and that talk was today. It was to talk to a patient...Reactions0reactionsComments1 comments
My Diagnosis Story: Strange SymptomsBeing a young woman diagnosed with bladder cancer, the thing I'm most often asked is, "How did it happen?". I've told my diagnosis story many times, and each time I...Reactions0reactionsComments6 comments
The "Other Bladders"It's bladder cancer awareness month, and as you know: Our Bladders Matter! But what if it's not your bladder? Now, this isn't as strange as it might sound. What I...Reactions0reactionsComments3 comments
Why We Need Awareness MonthSocial media has changed our lives in many ways. Many for the good but, of course, in other ways less positively. On the one hand, it is a great way...Reactions0reactionsComments0 comments
Bladder Cancer Awareness - How Do We Spread the Word?Most of us can probably say that we had never heard of bladder cancer before being diagnosed. Why is that? We constantly hear about other forms of cancer - breast...Reactions0reactionsComments0 comments
Electric Blanket Giveaway! (now closed)The Electric Blanket Giveaway is now closed. Thank you for your interest! May is bladder cancer awareness month! We are honoring bladder cancer awareness month with a giveaway. One lucky...Reactions0reactionsComments0 comments
Bladder Cancer Awareness Month: Our Bladders Matter!May is Bladder Cancer Awareness Month! This year during awareness month, we are highlighting the importance of advocating for yourself and the journey of becoming an empowered patient. Bladder cancer...Reactions0reactionsComments0 comments
Community Views: Support From Family and Friends During Bladder CancerBladder cancer can be an overwhelming journey. Having support during bladder cancer treatment eases the burden. Sometimes, loved ones may not know the best ways to offer support. They are...Reactions0reactionsComments0 comments
Boats, Bridges, and Bags: The Unexpected EmpowermentAmsterdam in the summer is an amazing place to be. When the sun is shining, it really is the most beautiful city. With sunlight bouncing off the boats cruising on...Reactions0reactionsComments0 comments
Losing More Than Just a MonarchToday has been a strange day. A day as a nation in the UK we will never forget. A day when we lost so much more than a figurehead or...Reactions0reactionsComments0 comments
Intimacy After CystectomyI am a sex-positive person. I think education and conversations surrounding sex and intimacy should be normal. I am even more passionate about these conversations being part of all the...Reactions0reactionsComments0 comments
Fallout From a Failed Chemo InstillationThe ride home from Mom's first chemo instillation was heavy. We had done everything within our power to prepare her for this day, but it felt like a failure of...Reactions0reactionsComments0 comments
A Secret Shame: Sharing the NewsI received the news that my mother had cancer when living abroad and studying for a master's degree. Hearing the words, "I have cancer," felt like a punch in the...Reactions0reactionsComments4 comments
Being BraveYou're so brave. I'm so inspired by you. You're doing so great. You are so strong - blah, blah, blah. I have heard all of this and pretty much every...Reactions0reactionsComments13 comments