Talking Away TabooBreast and balls. We feel comfortable talking about cancers that attack those body parts. Charities have done an amazing job of removing social taboos and making conversations about awareness, self-checks...Reactions0reactionsComments1 comments
My Personal Story of GratitudeOne evening, I found myself sitting on the sofa with my mom, having another one of our cancer “hash it out sessions.” It never fails; whenever I visit, we spend...Reactions0reactionsComments1 comments
Bladder Cancer and the MicrobiomeThere are trillions of microorganisms on or inside the human body. Microorganisms or microbes are tiny living things. They can only be seen under a microscope. These microbes include bacteria...Reactions0reactionsComments0 comments
You Too Can Ooze Ostomy ConfidenceDo you remember hearing the words ostomy, stoma, urostomy, or ileal conduit? I can bet many of you, like me, had never heard of them or knew what they were...Reactions0reactionsComments0 comments
The Guilt of Good HealthWhen my mother was diagnosed with stage 3 bladder cancer, I was studying abroad. Being so far apart when receiving the news of her diagnosis was definitely a challenging time...Reactions0reactionsComments2 comments
Empowerment, Empathy & UnderstandingEmpowerment. What does it mean? At its core, empowerment enables individuals or groups to gain greater control over their lives, making decisions that positively affect their well-being. But for someone...Reactions0reactionsComments1 comments
AI: The Future of Bladder Cancer Diagnostics and TreatmentBladder cancer is the most expensive cancer to treat over a lifetime. But artificial intelligence (AI) methods may reduce the cost of its diagnosis and treatment. AI can: This may...Reactions0reactionsComments2 comments
When Intravesical Chemotherapy Takes Your Breath AwayThe end of March 2021 began a whirlwind that consumed my life. I didn't realize at the time, but we were entering brand new territory in Mom's battle. While I...Reactions0reactionsComments1 comments
UroAmp: A New Predictive Tool for Bladder CancerConvergent Genomics has developed a urine test called UroAmp for bladder cancer. UroAmp can give doctors detailed genetic information about bladder cancer from a urine sample. UroAmp is a new...Reactions0reactionsComments2 comments
A Demonstration of True FriendshipAfter my radical cystectomy (RC), I experienced quite a few complications and spent a significant amount of time in a rehab facility. Due to staffing issues, I could not get...Reactions0reactionsComments4 comments
Stress and Vitamin DeficiencyAfter my radical cystectomy, I experienced severe hair loss. Although I did not end up bald, my medical team estimates I lost about 75% of my hair. I had very...Reactions0reactionsComments1 comments
The Power of WordsAs a family we’ve always been a pretty positive bunch. Growing up, our house was always one filled with laughter and jokes, sarcasm and satire. No one was exempt from...Reactions0reactionsComments1 comments
A Surprise (and Surprising) 60thRecently, my mom celebrated her 60th birthday. And for someone who had less than a 50/50 chance of survival a few years ago, this milestone birthday definitely meant a lot...Reactions0reactionsComments1 comments
My 8th Annual Urologist Follow-Up: Bladder Cancer Takes and ThoughtsThe night before, my wife and I talked a little about my visit today. I told her this was the most humiliating of all my follow-ups, and I've had a...Reactions0reactionsComments4 comments
The 14th Annual North Carolina Bladder Cancer RetreatWe all need support and to not feel alone. When I read of cancer patients who feel alone because they are not comfortable sharing their story with others, or because...Reactions0reactionsComments4 comments
Packing for a Cruise With an OstomyI am finally going on my first big trip since being diagnosed with bladder cancer - a 1-week cruise to the Virgin Islands. I am so excited, but also very...Reactions0reactionsComments2 comments
What Is Time Toxicity in Advanced Bladder Cancer?Treatment for advanced bladder cancer may provide survival benefits of several months to a year. During treatment decisions, these benefits must be balanced with downsides. Downsides include treatment side effects...Reactions0reactionsComments0 comments
Finding Peace in the DistanceA cancer diagnosis is never easy. It changes everything. Upon hearing the words and realizing, "I have cancer," it can feel as though time has stopped completely. Or alternatively, the...Reactions0reactionsComments0 comments
What Can You Do Without a WOCN Near YouHaving been an ostomate for 6 and a half years now and very active in the bladder cancer and ostomy communities, I know that even within the US, wound, ostomy...Reactions0reactionsComments0 comments
Beach Bag ReadyAs winter turns to spring and thoughts turn from spring to summer, many of us will start to think of vacations. If you are new to life with an ostomy...Reactions0reactionsComments6 comments