Stories

I am a 69 year-old active woman (retired health educator) living in rural Maynard, MA, with my husband of 38 years.  I've always considered myself an extreme lover of life...

First off, my oldest daughter was diagnosed too late with Bladder Cancer in 2018. She passed away in May of 2019. In June of 2019 I experienced blood in my...

My symptoms appeared on 4/7/20, with blood in my urine.  After tests and a biopsy, cancer was confirmed on 5/4. I decided on a study, with BCG and ALT803 (1 per...

The usual symptoms sent me to a urologist; blood in the urine, frequent and uncontrollable urination, painful urination. Dr did a cystoscopy and found three tumors in my bladder. I...

I'm a 74 year-old, healthy and active woman. Well, like so many others, my story began in December 2018 with, first, microscopic, then visible blood in my urine (no pain)...

When I had my first bag change after surgery I thought, this is gross how am I going to cope with this? But me and stomy are getting along lots...

I was peeing blood and it hurt to pee. That was about a year ago, thought I was trying to pass kidney stone. Went a year later, same problems plus...

I was born with Spina bifida. My lesion is L5-S1 which controls the bladder, bowels, and legs. I haven't used my bladder since I was three years old. What I...

My journey with cancer began in the summer of 2019, when I began having bright red blood in my urine. As an older woman, I had the usual bladder urgency...

Living with BC since 2014. I’ve had MANY cystoscopies, MANY rounds of BCG and Mitomyocin, and have another cystoscope scheduled on 10/29. Thank God all tumors have been non-muscle invasive;...

I am 28 years old and have had bladder cancer for 5 months. I have been fighting against cystitis several times a year for 13 years and during this time...

I was diagnosed with noninvasive high grade. Had 6 doses of BCG and had cystoscopy and TURBT. Came back low grade. Had 3 more BCG (why only 3?), scope, and...

I smoked since I was in Jr high, I knew it could cause cancer but not me. I was so wrong. At 49 years old I started peeing blood, went...

I am 77 yrs & I have been married for 56 years to a retired RN who was an Oncology nurse in the mid 70's. Just prior to Covid, while...

I am very fortunate compared to some of the stories I have read here. I had a urine test from my primary care doc. He found blood in my urine...

Hi. It all started with a very bad UTI that lasted over ten days. Went back to the GP and had more tests done. Said it was kidney stones as...

I was lucky as a retired RN to recognize an early sign - painless passage of blood in urine - the evening of my 67th birthday last March (2020). By...

I posted before about my journey, but wanted to give an update as to my goal of sparing my bladder as long as possible. I was diagnosed in October 2014...

I had 6 surgeries and 2 rounds of BCG, which has not worked. Was referred to MD Anderson hospital in Jax flat last week, and I chose to try the...

It seems my diagnosis story is not unique. Primary doctor checks me for a UTI and not finding any infections prescribes medicine for irritable bladder. I am an older woman...