My Experience with the After Effects of BCG
In late May of 2018, I experienced copious blood in my toilet during a usual morning void. I learned quickly this was to be hematuria.
That led to my diagnosis
An immediate call to my urologist began a series of tests: blood, urine, 6 cystoscopies, etc. This graduated to a full-blown TURBT operation (several days in the hospital), followed by a series of BCG (Bacillus Calmette-Guerin) procedures. The result: carcinoma in situ of the bladder.
Dealing with some side effects
The carcinoma was cleansed from the bladder as reported by my urologist. However, the BCG procedures did a number on my urinary tract (urethra). Two urine cultures ruled out any infection. What followed was constant pain in my urinary tract. I tried AZO, later changed to Pyridium (Dr. Rx), but these were discontinued due to possible effects to my kidneys.
Have you ever experienced pain down there?
My question: I would like to hear from anyone who may have experienced similar pain and discomfort in their urethra area. If so, what pain reliever they may have discovered. Thank you...
What is your treatment experience?
Have your views towards bladder removal changed since you were diagnosed?