High-Grade T1 Bladder Cancer

Last updated: February 2023

I was diagnosed 10 years ago and had the TURBT with a blast of chemo. Went into remission for 10 years. April 22, I suddenly could not urinate. I finally passed huge blood clots that had blocked my flow. I immediately went to the ER.

I was given a catheter and sent home. The next day, the bag was full of blood and clots, so I returned to the ER. While waiting to be admitted, finally, my flow with the catheter was blocked, and I was in intense pain with urine and clots backing up inside me. The catheter was removed, and amazingly, the bleeding stopped.

I had a TURBT that disclosed a few suspicious areas that were cauterized. This was all terrifying to me. I've had a cysto since, and I'm ok.

So far, so good; however, the next tumor will cause me to get the BCG treatments.

This is my story.

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