''

Not Knowing is the Hard Part

I was born with Spina bifida. My lesion is L5-S1 which controls the bladder, bowels, and legs. I haven't used my bladder since I was three years old. What I have is called a neurogenic bladder. I have been having drainage coming from below which it should be.

For years, they gave me bladder washing but it didn't help. I talked to my urologist about removing it since it's not in use, I had a urinary diversion done years ago. What I have is an Indiana Pouch that I cath. They finally decided to do the surgery. On Sept. 25 I had a cystectomy they found cancer in the bladder.

I have been scheduled for tests to see if it metastasizes - CT scans done, now I have to get a colonoscopy and endoscopy on Tuesday. I'm on pins and needles. I am 8 years of being breast cancer-free.

More on this topic

Do you have additional health challenges?

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The BladderCancer.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.