What's next?

Hi- I have been following your website for about six months and I am grateful that it exists. I have been a bladder cancer patient since July 2007 and am waiting to find out if I will be able to have a cystectomy in the near future. At this point, after many cystoscopies, seventeen TURBT surgeries, three types of chemotherapy and urethroplasty to rebuild a blocked urethra, it is time to consider having a cystectomy. I only wish I had met the urologist I spoke with last week a long time ago.

3 Years, 28 Rounds of BCG and being a caregiver

After initially being diagnosed in 2007 when I observed blood in my urine and had a large tumor removed, I was alright until 2010 when the cancer returned and I went through 28 BCG treatments while still trying to keep my job and being a caregiver to my first wife until she passed away.

Retirement and appreciation for life

Eventually, I was given a retirement offer and moved to another state. All the treatment I have gone through for cancer has impacted my strength and physical abilities even though I firmly believe in "mind over matter". The gift of being a cancer survivor is my appreciation in being alive, enjoying my family and not getting so upset about the "small stuff". Although I try to be positive and stay grateful, sometimes the pain I live with gets to me.

Spirtuality and hope

I read one of the articles on your forum about how our spiritual beliefs can be a great help as we go through our cancer struggles and that has helped me too. One thing I have learned is that it is valuable to seek a second or third opinion regarding bladder cancer, especially after being told that my cancer isn't bad enough because it has not spread to other organs.

Future is uncertain but I remain hopeful

My hope is that if I am able to have a cystectomy, that in the future I can regain some of my strength and maybe be done with bladder cancer. Fear of the unknown has made me hesitant to not consider cystectomy before and I am certain i will have many questions to ask the doctor when I visit with him.

Please share your experience with me, i'd love to connect

In the meantime, if anyone has had a similar bladder cancer experience, I would like to hear from you. In closing, I would like to say that attending a cancer support group and leaning on my faith are a few things that help me everyday. Also, when I allow other people to help me, that is a blessing to them -this is something I have had to learn.

Share Your Bladder Cancer Story Today
Help others feel a little less alone

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The BladderCancer.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Have you taken our In America survey yet?