Hope for a Happy New YearOn July 25th, 2019, everything stopped. It was like my world froze into place, and here we are now, and it feels...reactions5comments
Summertime Ostomy ManagementSummer has arrived in the southern United States, and the weather is sweltering. It's not unusual for the heat indexes here to...reactions2comments
The Right Book at the Right TimeA theme that has run consistently through my cancer journey has been timing. Everything has always happened in timing that has been...reactions2comments
Re-Staging My Bladder CancerIt is strange to think that 2 years ago we really were unsure what my future would look like with bladder cancer...reactions4comments
New Keytruda ProtocolBack on October 4th, 2019 I received my very first dose of Keytruda. For the following two years, I received my infusion...reactions2comments
Beating Hospital InsomniaIt is often said that hospitals are where you go to be treated, but home is where you get well. That idea...reactions1comment
Job Hunting With CancerAs a young adult with bladder cancer, one of the biggest hurdles has been balancing my career and my cancer. I needed...reactions1comment
Using a Co-Pay Assistance ProgramImmunotherapy is an incredibly expensive cancer treatment. On average, it can cost a patient over 100,000 dollars per year in drug costs...reactions1comment
Get a NotebookMedical appointments are hectic. Often times you are meeting with several people and covering many different issues in what feels like a...reactions2comments
No Evidence of DiseaseIt finally happened. Two years into treatment and I received the scan report I had been hoping for. The report read "no...reactions15comments
World Bladder Cancer Patient Coalition SurveyIn March of 2020, I was invited to join the patient advisory board for the World Bladder Cancer Patient Coalition. The board...reactions2comments
For The Next MeWhen I first started patient advocacy I was told I needed to find my "why." My reason for advocacy is what would...reactions1comment
Hiking with an OstomyThe weather has finally turned chilly and the leaves are putting on their best show of fall colors. With the great outdoors...reactions1comment
Ostomy HacksHaving lived with my urostomy for over two years I'm pretty confident in all aspects of ostomy life. My bag change routine...reactions7comments
Road Trip with an OstomyI love to travel and explore any chance I get, and even before COVID, this came in the form of long road...reactionscomments
Being Nominated for a WEGO Health AwardIn June, an email popped up with the subject line, "Congratulations, you've been nominated!" The first thing I thought was, nominated for...reactions2comments
Speaking at the Bladder Cancer RetreatBack in September, I had the absolute honor of speaking at the 2021 North Carolina Bladder Cancer Retreat. It was incredibly exciting...reactions1comment
Is it Normal or is it Cancer?We have all been there. You're in active treatment or maybe even NED (no evidence of disease). One day you feel a...reactions2comments
Urostomy Hydration: Tips and TricksStaying well-hydrated is a top priority for anyone with an ostomy, but possibly even more important for those of us with a...reactions1comment
Getting HelpOne thing I wish I had understood earlier in my cancer journey (and life in general) is it is OK to not...reactions6comments
