Summertime Ostomy ManagementSummer has arrived in the southern United States, and the weather is sweltering. It's not unusual for the heat indexes here to reach the triple digits and this brings along...reactions2comments
The Right Book at the Right TimeA theme that has run consistently through my cancer journey has been timing. Everything has always happened in timing that has been eerily just the way it needed to happen...reactions2comments
Re-Staging My Bladder CancerIt is strange to think that 2 years ago we really were unsure what my future would look like with bladder cancer. I was so sick, and we knew my...reactions4comments
New Keytruda ProtocolBack on October 4th, 2019 I received my very first dose of Keytruda. For the following two years, I received my infusion every 3 weeks with great success. The symptoms...reactions2comments
Beating Hospital InsomniaIt is often said that hospitals are where you go to be treated, but home is where you get well. That idea comes from the fact that sleep does not...reactions1comment
Job Hunting With CancerAs a young adult with bladder cancer, one of the biggest hurdles has been balancing my career and my cancer. I needed to continue working out of necessity as I...reactions1comment
Using a Co-Pay Assistance ProgramImmunotherapy is an incredibly expensive cancer treatment. On average, it can cost a patient over 100,000 dollars per year in drug costs alone for this life-saving treatment. Oftentimes due to...reactions1comment
Get a NotebookMedical appointments are hectic. Often times you are meeting with several people and covering many different issues in what feels like a rush. I know my oncologist can seem like...reactions2comments
No Evidence of DiseaseIt finally happened. Two years into treatment and I received the scan report I had been hoping for. The report read "no evidence of disease recurrence or progression". This means...reactions15comments
World Bladder Cancer Patient Coalition SurveyIn March of 2020, I was invited to join the patient advisory board for the World Bladder Cancer Patient Coalition. The board consists of members across the globe, with various...reactions2comments
For The Next MeWhen I first started patient advocacy I was told I needed to find my "why." My reason for advocacy is what would make my work genuine and ensure others would...reactions1comment
Hiking with an OstomyThe weather has finally turned chilly and the leaves are putting on their best show of fall colors. With the great outdoors calling my name I decided to take back...reactions1comment
Ostomy HacksHaving lived with my urostomy for over two years I'm pretty confident in all aspects of ostomy life. My bag change routine is down to a science and nothing about...reactions7comments
Road Trip with an OstomyI love to travel and explore any chance I get, and even before COVID, this came in the form of long road trips. When air travel became more restricted and...reactionscomments
Being Nominated for a WEGO Health AwardIn June, an email popped up with the subject line, "Congratulations, you've been nominated!" The first thing I thought was, nominated for what? Well, I was nominated in a category...reactions2comments
Speaking at the Bladder Cancer RetreatBack in September, I had the absolute honor of speaking at the 2021 North Carolina Bladder Cancer Retreat. It was incredibly exciting, nerve-wracking, and it remains one of the most...reactions1comment
Is it Normal or is it Cancer?We have all been there. You're in active treatment or maybe even NED (no evidence of disease). One day you feel a strange pain and your brain goes into overdrive...reactions2comments
Urostomy Hydration: Tips and TricksStaying well-hydrated is a top priority for anyone with an ostomy, but possibly even more important for those of us with a urostomy. Proper hydration is vital for kidney health...reactions1comment
Getting HelpOne thing I wish I had understood earlier in my cancer journey (and life in general) is it is OK to not be OK. I've always grown up with the...reactions6comments
Setting BoundariesWhen I started sharing my story online, I never anticipated just how many people would start following along. In just a few short months I had subscribers, a partnership with...reactions1comment