Setting BoundariesWhen I started sharing my story online, I never anticipated just how many people would start following along. In just a few...reactions1comment
Changing My Medical TeamIn May of this year, I was faced with a difficult situation. Stay at the small cancer center I had moved to...reactionscomments
My Bladder Cancer Medical BinderWhen I was diagnosed with bladder cancer I suddenly found myself in charge of tracking, packing, and keeping so many different things...reactions1comment
Reading Labs and Raising Red FlagsI am always emphasizing that cancer patients should make a point to be the most educated person in the room. I don't...reactionscomments
Going SoloCOVID changed how so many hospitals, cancer centers, patients, and their families have to approach treatment and procedures. A year and a...reactionscomments
Navigating Career Moves with Bladder CancerNo matter what your stage, type of treatment, or even what urinary diversion you may end up with after a bladder cancer...reactions2comments
Bladder Cancerversary: Reflecting on Year 2In the cancer community, we acknowledge the anniversary date of our diagnosis. We call it our "cancerversary." I say acknowledge because celebrating...reactions1comment
CT Day RoutineAfter all the needle pokes, procedures, and tests I have endured during my cancer journey, there is still one thing that gives...reactionscomments
Exercising with an OstomyI have always enjoyed being active. For years I danced recreationally and professionally. I also took up powerlifting for a few years...reactionscomments
Ostomate on the Go: The NecessitiesFor those who have gone through bladder cancer, had a radical cystectomy, and either chosen or ended up with a urostomy -...reactions6comments
Looking The PartBlame it on Hollywood or maybe those heart-wrenching cancer commercials, but society definitely recognizes a very specific, stereotypical look for cancer patients...reactions3comments
Trying Holistic RemediesI am a 100% supporter of science-backed medicine. It is my medical team’s knowledge and care that has brought me back from...reactions1comment
Swollen Ankles and Other Post-Op SymptomsThere is a lot I was prepared for after my radical cystectomy surgery. A big scar, an ostomy, a rigorous recovery, but...reactions6comments
What to do When Treatment is Going WellMy latest set of CT scans have come back saying I’m still in good shape. My labs are great, I’m handling treatment...reactions1comment
One More Thing: Kidney Disease and Lifestyle ChangeI have gotten pretty good at rolling with the punches. I think any cancer patient has to be prepared to remain flexible...reactions1comment
Support Fatigue and Managing ExpectationsAs I was in the hospital recovering from my radical cystectomy, the flowers and cards from family, friends, and supporters covered every...reactionscomments
Perks of Being an OstomateTwo years ago I would have said there was absolutely nothing positive about having a urostomy. It was uncomfortable, always a hassle...reactions11comments
Getting the COVID-19 Vaccine While on ImmunotherapyWhen the vaccine for COVID-19 was released, I immediately sat down with my oncologist to discuss the pros and cons of me...reactions1comment
Survivor's Guilt and Bladder Cancer: the Unseen WeightSurvivor's guilt: noun, a condition of mental and emotional stress experienced by someone who has survived an incident in which others died...reactions1comment
What Is Grief Tourism?Grief tourist: someone who pretends to care about your chronic/serious illness on social media, but never offers their help in any real...reactions1comment
