Accept. Adapt. Advocate.Many organizations and companies use this alliteration. But I remember hunting around for a cancer shirt on Etsy and I stumbled across a seller with this phrase on a shirt...Reactions0reactionsComments1 comments
"It Runs In The Family"Not long after I had recovered from my radical cystectomy, the medical team at Emory University asked that I have a full genetic panel completed. My medical team was dumbfounded...Reactions0reactionsComments1 comments
Navigating Year 2As we celebrated the start of a new year, I began looking ahead and trying to make a plan for year 2 of active cancer treatment. The routine of immunotherapy...Reactions0reactionsComments1 comments
Fighting Cancer TogetherAlmost exactly a year before my diagnosis, my mom called me on Sunday afternoon and delivered the worst news imaginable. “They found cancer.” She had been diagnosed with thyroid cancer...Reactions0reactionsComments1 comments
Let's Go SwimmingThis may be an odd topic as the temperatures are dropping in the northern hemisphere, but for me, the cold weather season is when I enjoy visiting my local indoor...Reactions0reactionsComments3 comments
Prioritizing My Mental HealthFighting cancer is usually seen as a physical fight. Your body is being attacked and through medicine, surgery, and sometimes brute strength, you fight back against the disease. Medical teams...Reactions0reactionsComments1 comments
It Wasn't Just Menstrual CrampsIn late spring of 2019, I knew something was up. I was experiencing what I thought were heavy periods and spotting along with fatigue and just constant discomfort that ranged...Reactions0reactionsComments5 comments
The Worst Phone Call I Ever MadeSo many aspects of the initial part of my cancer journey are blurry. There was too much pain, too much confusion, and way too much medication to remember things fully...Reactions0reactionsComments2 comments
Funny Ostomy QuestionsOstomies are strange things. I’ll admit when told I would be getting a urostomy, I had to immediately google what it was and I was dumbstruck. A piece of intestine...Reactions0reactionsComments3 comments
Being Your Own AdvocatePatient advocacy is a cause near and dear to my heart. This task is most often handed to the patient’s caregiver, meaning their spouse, close family, or parents, sometimes even...Reactions0reactionsComments1 comments
What Is It Like Being on Immunotherapy?Immunotherapy feels like the new kid on the block when it comes to cancer treatment. And in the world of medicine, it really is. Keytruda was approved for use in...Reactions0reactionsComments0 comments
Weight Struggles With Bladder CancerMore often we tend to hear of people struggling to keep weight on while going through cancer treatment. Chemo and radiation can cause lack of appetite, nausea, and fatigue, all...Reactions0reactionsComments0 comments
An Immunotherapy Clinical Trial as My First-line TreatmentIf you are familiar with my cancer story, you know that it has been ANYTHING but typical. From my age, stage of diagnosis, recovery story, even my treatment plan. Nothing...Reactions0reactionsComments1 comments
Beating Brain FogYou may have heard of “chemo brain,” but cancer-related brain fog is not limited to those who have experienced chemotherapy. So, what do we mean when we cancer patients say...Reactions0reactionsComments0 comments
One Year Later: Living with an Ostomy and Stoma Care TipsWell, it's official: I have had my life-saving stoma for an entire year now. Within 2 weeks of my diagnosis, my oncologists and surgeons knew I needed to have my...Reactions0reactionsComments2 comments
The Youngest in the RoomAs I sit in the waiting room of my cancer center, I look around and see the chairs spaced a perfect six feet apart. There are no visitors, and everyone’s...Reactions0reactionsComments2 comments
There Is Life with an OstomyContent warning: The following article mentions details surrounding the author’s experiences with pain, PTSD, and suicidal ideation. If you or someone you know is struggling, please know that there are...Reactions0reactionsComments0 comments
Living with Chronic CancerI was diagnosed with stage IV metastatic bladder cancer. The cancer had invaded my bladder muscle wall, I had a grapefruit-sized tumor, and after pathology, we discovered 4 involved lymph...Reactions0reactionsComments1 comments
Managing My Cancer and My CareerBeing diagnosed at age 28 with stage IV cancer brings so many challenges beyond just fighting this disease. Of course, there is the devastation of hearing “you have cancer”, facing...Reactions0reactionsComments0 comments
I Don’t Sleep with a Night DrainI don’t sleep with a night drain system. I know that sounds crazy, but hear me out. My radical cystectomy was in August 2019, by November I was sleep deprived...Reactions0reactionsComments0 comments