The Painful Punch of the “Survival Brag”The only version of bladder cancer that I know well is the worst one. The one that kills. The one that made...reactions2comments
Cancer Positivity Can Isolate Those With Poor PrognosesA couple months after my first husband, Ahmad Khoshroo, was diagnosed with metastatic bladder cancer, I decided to go to a support...reactionscomments
Don’t Be Afraid To Keep Asking Until You Find the Right FormulaIt is helpful – as a bladder cancer patient or caregiver – to keep in mind the idea that the medical system’s...reactionscomments
The Answer to Your Question: Get a Second Opinion!I’ve been talking to and working with bladder cancer patients and caregivers for five years. I have been a caregiver myself and...reactionscomments
Metastatic Bladder Cancer When We Least Expected ItI lost my first husband to metastatic bladder cancer in 2014. That was after being told in 2011 that he had been...reactions3comments
What To Do When You Get The Worst Possible Bladder Cancer Diagnosis“The tumor board agreed unanimously that surgery is not an option,” the urologist told us. He didn’t make much eye contact so...reactions1comment
Which Visitors Represent the Patient During a Hospital Stay?The story in March that a Kaiser Permanente hospital in the San Francisco Bay Area used a telemedicine doctor to inform a...reactionscomments
The Luxury of HealthI’ve recently had some nerve pain in my hand that is likely to be carpal tunnel syndrome. It’s not that bad, very...reactionscomments
The Only Way Out Is ThroughWhen life is going well, it’s easy to forget the raw distress that a bladder cancer diagnosis (or even the possibility of...reactions1comment
Managing Cancer Side Effects as a CaregiverCancer itself and treatments for cancer can cause a number of symptoms and side effects that often deeply impact daily life. For...reactions1comment
Bladder Cancer Comic: Prescription Pick-Up DecisionsCheck-ups and other urology appointments can be really stressful for people with bladder cancer. Having a friend, partner, or other caregiver attend...reactionscomments
Bladder Cancer Comic: Help Around the HouseWhile recovering from a bladder cancer treatment or surgery, taking time to rest is important. Having a partner or friend who can...reactions2comments
Managing Family Expectations as a Cancer CaregiverWhen your loved one is diagnosed with cancer, everyone’s world is turned upside down. Understandably, the cancer patient becomes the priority –...reactionscomments
Allow Yourself to Be Shocked and Then Craft Your PlanTime and again, I have heard bladder cancer patients and caregivers describe that moment when they received the cancer diagnosis as a...reactionscomments
The Challenges of Hiring Home Health AidesWhen my first husband had metastatic bladder cancer, our needs for help and support shifted frequently. One week, pain management would be...reactionscomments
How Caregiving Affects EmployersThe moment I became a caregiver to a bladder cancer patient, was when my first husband was diagnosed with metastatic disease. Suddenly...reactions1comment
Too Much and Not Enough HelpWe had just settled into the hospital room when the phone rang. I answered it. “Is this Ms. Khoshroo?” a perky female...reactionscomments
Five Helpful Tips for CaregiversReceiving a diagnosis of bladder cancer can be a life-altering experience, not only for the person diagnosed but also for the spouse...reactionscomments
Beginner's Mind and Cancer MindMindfulness has become a very popular concept in recent years as a means of relaxation and remaining anchored in the present moment...reactionscomments
Caregivers Have a Right to Resist Performing Medical TasksIf you compare our lives in 2018 to 25 years ago, it is stunning how much work has been outsourced to us...reactionscomments
