From My Son: Dealing with My Mom's Bladder Cancer DiagnosisHow do you break the news of your diagnosis to your adult children? That question is hard enough to answer when your...reactions10comments
Start Caring for Yourself TodayWe live in a culture that admires and celebrates hard work. This is a good thing to the extent it inspires us...reactions2comments
Treating Mom with BCGAbout 10 days after Mom's successful TURBT procedure, her oncology surgeon began her on a regimen of BCG. Fortunately, the progression of...reactions9comments
I Lived the National Caregiving Trends (Part Two)In May, the AARP released a report, Caregiving in the United States 2020. It is a comprehensive survey of unpaid caregivers in...reactions1comment
How Does the Care Team Treat the Caregiver?Cancer caregivers are often described — in brochures or panel discussions – as selfless. Friends, family, and providers have a tendency put...reactionscomments
Cancer Support Groups Could Be Better OrganizedMost major cancer centers offer support groups for patients and caregivers. Typically, these groups are organized by type of cancer (breast, lung...reactionscomments
Stage IV Caregivers, Acknowledge How Hard This Is So The World Will Be On Your SideWhen my first husband had Stage IV bladder cancer and our days were incredibly difficult, I remember wondering often: why doesn't the...reactionscomments
Palliative Care Is Not Hospice: Seek It Out EarlyThere is a common misconception that palliative care is synonymous with hospice. And that to receive palliative care you must be enrolled...reactionscomments
TURBT Is an Acronym I Know Too WellIt seemed like no time from when we finally got Mom's bladder cancer diagnosis that she was scheduled for the first surgery...reactions7comments
Caregiver Check-in: Your Well-Being Matters Too!As we enter the season of being "thankful", we'd be remiss to not acknowledge that November is Caregiver Awareness Month! Having come...reactions5comments
Diary of a Caregiver: Sun-DowningThis is the 4th entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
Caregiving with a "C"Caregivers are starting to get more attention—in the press, in research, and in discussions about healthcare and illness. And I am both...reactionscomments
The Importance of Emotional Support for Patient and CaregiverJust how important a caregiver can be to a person with cancer is becoming clearer. Many studies have shown that a person’s...reactionscomments
Online Illness Support from Peer Patients and Caregivers Resonates with Those SufferingWhen my husband Ahmad had metastatic bladder cancer, I was very limited in how often and for how long I could leave...reactionscomments
The Rewarding Work of Being a Volunteer Moderator for an Advanced Cancer Caregiver Support GroupIn my Part One article, I wrote about the nonprofit AnCan's Advanced Cancer Caregivers’ Call that I co-moderate. This virtual support group...reactionscomments
Caregivers Feel Rage, TooIt has been 6 years since I was a caregiver in the trenches of stage IV bladder cancer. My husband and I...reactions3comments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report...reactionscomments
Two Caregivers Share Their StoriesIn so many ways, caregivers make it possible for people diagnosed with bladder cancer to survive. After I had my TURBT surgery...reactionscomments
What Would The Non-Survivors Tell Us?We hear a lot from bladder cancer survivors — about their stories, their recommendations, their fears, and their triumphs over cancer. But...reactionscomments
I Lived the National Caregiving Trends (Part 1)I don’t need the American Association of Retired Persons (AARP) to tell me that unpaid caregiving is a tough job in the...reactionscomments
