Caregivers Have a Right to Resist Performing Medical TasksIf you compare our lives in 2018 to 25 years ago, it is stunning how much work has been outsourced to us...reactionscomments
Living with the UncertaintyI think living with the uncertainty that bladder cancer presents us is one of the most challenging aspects of the disease. Whether...reactionscomments
Diary of a Caregiver: A New Normal at HomeThis is the 8th entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
I Am a Caregiver!I’ve shared nine pieces about the beginning of my grandfather’s journey with bladder cancer. The scary times, hospital issues, rehab, coming home...reactions1comment
Diary of a Caregiver: A Year LaterThis is the 9th entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
Diary of a Caregiver: Planning to Go HomeThis is the 7th entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
Diary of a Caregiver: Post-SurgeryThis is the 2nd entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
A Cancer Caregiver's Reading ListI lost my first husband to bladder cancer in 2014. Since then, I have become a patient advocate. When he was ill...reactionscomments
Diary of a Caregiver: Why Won’t This Thing Work?This is the 6th entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
Remember the Basics of “Patient-Centered” Care“Patient-centered” has become a buzzword in healthcare in the past few years. Doctors and nurses talk about “patient-centered” care at conferences. Research...reactionscomments
The Wisdom We Gain From Confronting Our MortalityWe all know that someday we will die. And while we know this in an intellectual way from a young age, I...reactionscomments
Why Are We Shocked at the Idea That This Could Be it?Is there much in life you can imagine that’s worse than receiving a terminal cancer diagnosis? Probably not. Somehow, we all know...reactionscomments
How to Ask for Help As a Cancer CaregiverWhen my first husband, Ahmad, had metastatic bladder cancer, people often said “let me know how I can help.” And while I...reactionscomments
How to Be an Empowered (and Empowering) Caregiver to A Stage IV PatientI was the caregiver to my first husband, Ahmad Khoshroo, during his 11 months facing Stage IV bladder cancer. It was the...reactionscomments
What Is It You Plan To Do?At risk of sounding at best cliché, and at worst, utterly insensitive: find the good in your or your family member’s cancer...reactionscomments
Why Cancer Patients Are Legitimately Frustrated with Medical BillingWhen my first husband, Ahmad, was diagnosed with metastatic bladder cancer, the disease and prognosis were challenging enough. Dealing with the medical...reactionscomments
A Day of "Good" ProblemsDuring the 11 very challenging months that my first husband, Ahmad, had metastatic bladder cancer, I ached for the lightness of the...reactionscomments
The Small Can Become Daunting During CancerWhen life is good and we and our family are healthy, we often take for granted many small daily activities. We perform...reactionscomments
Diary of a Caregiver: Back to the ICUThis is the 3rd entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or...reactionscomments
Cancer Caregivers Must Find Their OutletsBeing a caregiver to anyone is exhausting. Being a caregiver to a terminally ill cancer patient can consume you. And make you...reactionscomments
