BCG Treatment Question
I've been given options of BCG treatment or cystectomy for T1 high grade. I'm waffling between them. I understand that if I choose BCG treatments, I need to add bleach to the toilet following urination for 6 hours after each treatment. Since my wife is highly allergic to bleach odor, I'm wondering if anyone else has had to deal with this. Any advice, really, is welcomed! Thanks.
I am not medically trained but I know vinegar can be used in some occasions instead of bleach. I am not sure if it is suitable after BCG treatments. I would check with your medical team. Laura, Moderator, BladderCancer.net 
@Dusty - I am not medically trained. Please confirm with your doctors but it is my understanding that BCG is a live product and bacteria can remain for hours later. Bleach needs to be used as a disinfectant to rid this from the toilet. Other products may not be as effective. I wish you well as you make your decision. Linda ( moderator, Bladdercancer.net team member)
@Dusty I wonder how long the odor is present as that may be a factor. Also, this may seem strange - but is there another place you could empty that is not your own home? I would explain the situation to your doctor and see what your options are. I do know that when I was presented with the BCG option as it would have been difficult for me to hold it and leave the office I was told I would need to stay and empty there. Just a thought to ponder. I personally chose to go with RC and get rid of the problem out of the gate 7 years ago. It is a very personal decision and needs to be make by you and for the right reasons. My best to you. Linda ( moderator, Bladdercancer.net team member)
Dusty - I did see that this question was posted on another forum also and hope that you have found answers to your question. My best to you. Linda ( moderator, Bladdercancer.net team member)
Thanks, Linda and thanks everyone for reaching out on both sites. After much deliberation, I've decided to have a radical cystectomy with an iliel conduit. All the best to everyone!
@Dusty - I have a tip sheet for RC/IC surgery people. It is fairly long so if you have any interest in it, please message me with your email and I will get it right out to you. I had RC/IC 7 years ago and am doing great. No regrets. Please know that we are here to provide support for you every step of the way. My best to you. Linda ( moderator, Bladdercancer.net team member)
making a decision and having next steps while I am sure with a little apprehension, for sure gives you a sense of progression, moving forward. Wishing you the best of luck. Like Linda, I have been through the op and happy to answer any questions. Laura, Moderator, BladderCancer.net
