caret icon Back to all discussions

BCG Treatment Question

I've been given options of BCG treatment or cystectomy for T1 high grade. I'm waffling between them. I understand that if I choose BCG treatments, I need to add bleach to the toilet following urination for 6 hours after each treatment. Since my wife is highly allergic to bleach odor, I'm wondering if anyone else has had to deal with this. Any advice, really, is welcomed! Thanks.

  1. I am not medically trained but I know vinegar can be used in some occasions instead of bleach. I am not sure if it is suitable after BCG treatments. I would check with your medical team. Laura, Moderator, BladderCancer.net

    1. @Dusty - I am not medically trained. Please confirm with your doctors but it is my understanding that BCG is a live product and bacteria can remain for hours later. Bleach needs to be used as a disinfectant to rid this from the toilet. Other products may not be as effective. I wish you well as you make your decision. Linda ( moderator, Bladdercancer.net team member)

  2. @Dusty I wonder how long the odor is present as that may be a factor. Also, this may seem strange - but is there another place you could empty that is not your own home? I would explain the situation to your doctor and see what your options are. I do know that when I was presented with the BCG option as it would have been difficult for me to hold it and leave the office I was told I would need to stay and empty there. Just a thought to ponder. I personally chose to go with RC and get rid of the problem out of the gate 7 years ago. It is a very personal decision and needs to be make by you and for the right reasons. My best to you. Linda ( moderator, Bladdercancer.net team member)

    1. Dusty - I did see that this question was posted on another forum also and hope that you have found answers to your question. My best to you. Linda ( moderator, Bladdercancer.net team member)

      1. Thanks, Linda and thanks everyone for reaching out on both sites. After much deliberation, I've decided to have a radical cystectomy with an iliel conduit. All the best to everyone!

        1. @Dusty - I have a tip sheet for RC/IC surgery people. It is fairly long so if you have any interest in it, please message me with your email and I will get it right out to you. I had RC/IC 7 years ago and am doing great. No regrets. Please know that we are here to provide support for you every step of the way. My best to you. Linda ( moderator, Bladdercancer.net team member)

        2. making a decision and having next steps while I am sure with a little apprehension, for sure gives you a sense of progression, moving forward. Wishing you the best of luck. Like Linda, I have been through the op and happy to answer any questions. Laura, Moderator, BladderCancer.net

      or create an account to reply.