Active todayPreparing for Maintenance TreatmentMy follow-up cysto after 6 weeks of treatment and 6 weeks rest revealed no cancer in the bladder. That was great news! However, I'll be starting the first round of...Reactions 0 reactions Comments3 repliesNED/RemissionSide EffectsTreatment
BCG side effects impact on successI recently had my third BCG installation for high grade NMIBC, following two turbts (tumors removed in first, no residual cancer in second). With this third treatment, I had slightly...Reactions 0 reactions Comments2 repliesSide Effects
FeaturedPainful cramping of neobladder and intestinesI am a 73 year old female who lives in Honolulu, Hawaii. In 2012 I had my bladder and urethra removed at Stanford University Medical Center. I have a neo-bladder...Reactions 0 reactions Comments20 repliesNeobladderSide Effects
FeaturedIntravescical BCG What changes in the body to expect after 1st cycle of intravescical BCG...Reactions 0 reactions Comments21 repliesNewly DiagnosedSide EffectsTips & AdviceTreatment
Side Effects of Intravesical ChemotherapyHave you experienced any unusual symptoms during intravesical chemotherapy (ex., skin, mouth, or stomach issues, etc.)? Have you felt fatigue, loss of appetite, or other uncommon side effect...Reactions 0 reactions Comments2 repliesSide EffectsTreatment
FeaturedExcess mucous in my bagRecently I have noticed an increase in the mucous in my urostomy bag. Could this be caused by me eating certain foods or taking certain vitamins and supplements...Reactions 0 reactions Comments8 repliesNeobladderSide EffectsTips & AdviceUrostomy
Stage 3 Bladder Cancer I am a 65 year old male and I have been diagnosed with Stage 3 bladder cancer. They told me it may have spread to lymph nodes but they wouldn’t...Reactions 0 reactions Comments40 repliesNewly DiagnosedSide EffectsTips & Advice
FeaturedBladder Spasms Post BCGHi, I am writing on behalf of my father (doesn't use a computer.) He was diagnosed with Stage pT1 NMIBC in March of 2020. He had a TURB-T followed by...Reactions 0 reactions Comments18 repliesSide EffectsSymptomsTreatment
BCG Treatment QuestionI've been given options of BCG treatment or cystectomy for T1 high grade. I'm waffling between them. I understand that if I choose BCG treatments, I need to add bleach...Reactions 0 reactions Comments9 repliesTreatmentResearch & Clinical TrialsSide EffectsTips & Advice
Reactive arthritisI just joined the group today and I can't believe that no-one seems to have mentioned reactive arthritis yet. I am a 71-year old male who is (was) physically active...Reactions 0 reactions Comments20 repliesSide Effects
