Living With a NeobladderI received a link in my email today of a republished 2017 article from the editors, Living With a Neobladder. After being diagnosed with the extremely rare Small Cell Bladder...reactions4repliesCopingNeobladderSide Effects
Anyone to share experiences with Gemcitabine and Docetaxel?I was not success with two series of BCG so starting tomorrow my urologist will begin the Gem/Doc protocol with me. I believe the timing will be similar as the...reactions3repliesSide EffectsTreatmentSymptoms
Extreme Pain After MitomycinMy daughter finished 6-weeks of mitomycin 2-weeks ago. She is experiencing excruciating pain urinating (75% of stream is fine but the last part is painful and burning). Her urine is...reactions1replySide Effects
Intense pain post treatmentI'm 78 years old. I was diagnosed with non-invasive bladder cancer stage 2 in November of 2020. I had my tumor removed by January of 2021. So far, I’ve had...reactions1replyCystosopy & ScreeningSide Effects
Newly diagnosed FEMALE I am elderly female, recently diagnosed with bladder cancer after complaining of hematuria, urgency and discomfort. I live alone and in a new area where I don’t know anyone. Cystoscopy...reactions3repliesSide Effects
6 months since my neobladder surgery In two weeks, it will be 6 months since my neobladder surgery. I am still experiencing pain and discomfort in the area of the operation. My inner thighs are still...reactions1replySurgeryCopingSide Effects
BCG treatment I just received the last of my 3 maintenance treatments. I had no reaction for the first 6. Now I have flu like symptoms, fever, and terrible knee pain. Very...reactions1replySide Effects
BCG: Don't believe everything you read on-line.I just completed 6 weeks of BCG. When I started, I was petrified. Not just because I had cancer, but because of the side effects I read about. I'd just...reactions2repliesTreatmentSide Effects
How long do painful bladder spasms last after chemo/radiation therapyI completed my bladder sparing treatment (turbt/chemo/radiation) for T2 muscle invasive, 10 days ago and my excruciating pain from hourly bladder spasms, day and night is unbearable and wearing me...reactions5repliesSide EffectsTreatment
6 Doses of MitomycinI am due to have 6 doses of mitomycin after having a new tumour removed 3 months after the removal of a first one. Can anyone advise me of their...reactions4repliesSide Effects