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Bladder Spasms, Inability to urinate, severe pain

Hello: I am 72. I have metastatic prostate cancer and bladder cancer which was treated with BCG.
For the past 2 months I have been having episodes of severe pain at the end of my penis (10 out of 10) and an inability to urinate. Indwelling catheters do not work for me after 2 or 3 days.
I have found that intermittent catheters work to relieve the urine from the bladder and relieve the pain. However, I am now having to catheterize 2 or 3 times a day as the condition worsens.
The urologist has left me unsatisfied as to what is causing this condition. I currently have no uti but have recently.
Questions. Why am I getting these spasms? Why the severe Pain?
Is there any treatment people have found effective? Medicine to relieve the spasms and pain? Surgical procedures? Can this condition go away on it's own?
Thanks for any advice.
Ron

  1. hi. Sorry to hear you are experiencing this awful pain. I am sorry I don’t have any advice to offer. Is it worth getting a different doctor to take a look and give some advice? Laura, Moderator, BladderCancer.net

    1. @RonC - You certainly have been through a lot. I am not a medical professional and therefore cannot dispense medical advice. After reading your post my first suggestion would be to get a second opinion as to the possible reason for your spasms. I had bladder spasms and inability to completely void prior to my diagnosis. A large tumor was found at the base of my bladder by the opening to my urethra which seemed to be the reason for most of my issues. Have you had any tests on this area to see what might be causing these problems? Again, I would seek out another doctor and hope that you are able to find relief and answers soon. Please keep us posted, I wish I had more to offer in the way of advice. My best to you. Linda Urbanski ( moderator, Bladdercancer.net team member)

      1. Thanks for your reply Linda. I had a general cancer check up cystoscopy 4 weeks previous to these spasms and nothing unusual was seen. I catheterized 3 times yesterday about 6 hrs apart and got relief from that. Today no catheterization at all, hopefully a good sign. Just wondering if frequent intermittent catheterization is an issue. Any recommendations for easy to use catheters.

        1. Hi. Like Linda I unfortunately not medically trained and I have no personal experience of a catheter. I did find this which you can download and may be of use. https://www.bladderandbowel.org/downloads/catheter-care-pdf-download/ Hope things improve for you. Laura, Moderator, BladderCancer.net

      2. Thank you Laura

        1. no problem at all. Take Care, Laura, Moderator, BladderCancer.net

        2. how are things with you? Laura, Moderator, BladderCancer.net

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