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Hi to all

I am waiting to go to urology on Thursday morning to see the consultant about my SPC Leaking all the time and I've had lots of blood in my urine for the past year
and what looks like floating cauliflower inside my bladder I was told it was debre in my bladder i do not belive what they said.
I cannot wait to go for my appointment to find out what this is I am constantly having fatigue no energy pelvic pain i will let you know what they say when I am home.
I have had lots of cytoscopys done previously.

  1. Hi just checking in on you. How did your appointment go? Jill (Team Member)

    1. Hi to all,
      I am waiting to have a urostomy operation when my diabetes is better controlled in about 6 mnths time I will still need another cytoscopy done too.
      And still need botox in the meantime for urgency n frequency ect.

      I am being referred to see a stoma nurse and back to urology.

      Amazing628.

      1. Thank you for sharing what you’re going through. It sounds incredibly difficult and concerning. Persistent bleeding, fatigue, pelvic pain, and unusual findings like you described need thorough evaluation, so it’s good that you’re seeing the urologist soon. Trust your instincts and don’t hesitate to ask questions or seek a second opinion if you feel something has been overlooked. It’s completely valid to want clarity. Please take care and rest as much as you can until your appointment. Wishing you strength and hoping you get clear answers and a helpful treatment plan. Do update us when you’re able.

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