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Cystoscopy experience

I had my first cysto today exactly six weeks after BCG induction therapy. There was perhaps one moment of minor discomfort. Initially, my doctor found healthy looking tissue but then saw some reddish velvety patches and some red dots, as she moved on, pointing out the difference to me between the two. Her conclusion: the red could be inflammation from the BCG or it could be problematic, so she wants to biopsy the questionable areas. I dread the thought of another turbt, but she says it will be fast as it won't involve scraping, and then another round of BCG is likely. I'm feeling mostly relieved, and want to believe my immune system is up to the task of fighting this formidable foe. Has anyone had a similar experience and if so, what were the longer term results? Is it okay to have three turbt procedures within six months time?

  1. that sounds overall positive. As you know I am not medically trained but from what I have read from others, I don’t think 3 TURBT in 6 months is an issue. You will get through this next step and we are here for you. Wishing you well. Keep on touch. Laura, Moderator,

    1. Thanks so much for sharing your experiences. I am glad that things

    2. @CommunityMember398 - Great news. We are always happy to hear that someone is doing well and that their treatments are working. My best to you. Linda Urbanski ( moderator, team member)

  2. @laurelg - I am happy to hear that you had your cysto. I had 2 TURBTS in 3 weeks so I am going to assume that 3 in 6 months are OK. I also think that you will feel much better knowing exactly what is going on. Sending prayers your way that your TURBT goes well and that you can get on with your life and just keep vigilant. I am also happy to hear that you are feeling relieved after your test as that is the best thing. Keep us posted on how you are doing. You got this!!! Linda Urbanski ( moderator, team member)

    1. @laurelg - I am happy to hear that you had the Cysto and will be moving forward with the TURBT. I do know of people who had 3 TURBTS in 6 months. I had 2 in a month so I would think that would be fine to have 3 in 6 months. I would ask the doctor if you have specific concerns. My best to you. Linda Urbanski ( Linda Urbanski moderator, team member)

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