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treatment success

Following a January diagnosis of NMIBC, two turbts, a six week course of BCG, a cysto that showed red patches, I am elated to report my good news. My doctor scheduled a bladder biopsy to determine if the velvety red patches were CIS or inflammation from BCG. This procedure was a fulguration, not quite as intense as a turbt, and pathology results showed no cancer! It was inflammation after all, so apparently the BCG worked well. Waiting and worrying almost did me in, but today I am elated and grateful. I'm also under no illusion that this is the end of my journey. Hopefully, a round of maintenance BCG is in my future and of course, ongoing monitoring procedures. Learning of my good fortune is a huge motivation to continue eating well as a vegetarian, exercising regularly and keeping a positive outlook to the best of my ability.

  1. lovely to hear from you and congratulations on your good news. Wishing you continued good health . You great positive attitude will serve you well. Have a great weekend. Laura, Moderator, BladderCancer.net

    1. This is so nice to hear, don't worry you will swim out of this

      1. @laurelg - Great to hear that you are NED. That and a positive attitude that you clearly have, will get you through this!! My best to you Linda Urbanski ( moderator, Bladdercancer.net team member)

    2. Dear laurelg. I am also a laurelg so it was so shocking to see that there was another one like me! I was diagnosed with MIBC two years ago and after four cycles of chemo was cancer free for a year before it came back as NMIBC. I had six weeks of BCG and am now on BCG maintenance. I start again on Monday for three weeks and then will be tested again in September. Each time I have a catscan, MRI and a cystoscopy (all on the same day), I live in fear that it will return. So I know how you feel. I pray that both of us will continue to be successfully treated so we can retain our bladders. Wishing you all the best... Laureldg

      1. wishing you well with the next step in treatment. Let us know how you go. Laura, Moderator, BladderCancer.net

      2. @laureldg3 - Best of luck to you with your BCG maintenance and follow up testing. Bladder cancer seems to be a very sneaky form of cancer and therefore being vigilant is so important. Sending prayers your way that all goes well. My best Linda Urbanski ( moderator, Bladdercancer.net team member)

    3. Greetings laureldg. I too am stunned to learn of another laurel on this site with a somewhat similar BC journey! Your experience is most astounding - to start with MIBC, get chemo treatment and see cancer return but not progress must have tested your resolve and outlook. It's easy to celebrate our successes, but challenging to live with the fear, as you mention, of a recurrence. I look forward to hearing the results of your future testing, and wish you ongoing health and contentment.

      1. so good to see everyone supporting each other. Hope today is a good day for you. Laura, Moderator, BladderCancer.net

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