New Keytruda ProtocolBack on October 4th, 2019 I received my very first dose of Keytruda. For the following two years, I received my infusion every 3 weeks with great success. The symptoms...reactions2comments
Processing “The New Norm” after Ostomy SurgeryI have a love-hate relationship with the phrase "the new norm". It's a bit like marmite, many either love it or hate it. Only it's a little different. You can...reactions3comments
Moments MatterI get up at 3:30 in the morning, six days a week to go to work. Friday, was no different. Get up, pack my lunch and get my coffee and...reactions13comments
Beating Hospital InsomniaIt is often said that hospitals are where you go to be treated, but home is where you get well. That idea comes from the fact that sleep does not...reactions1comment
Here's My StoryThis is my second bout with cancer, I am currently 73 years old. Six years ago a routine CT scan (routine because my primary care MD knew I was a...reactions7comments
Have You Truly Grieved the Loss of Your Bladder?Let's be honest right out of the gate, not a single one of us woke up one morning and said, "Gee - I think I want to have my bladder...reactions6comments
Accepting What You Can Not ChangeWhether you are on day 1, day 101, or day 1001 of a bladder cancer journey, working towards accepting what you can not change is probably the hardest goal you...reactions3comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest!" Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...reactionscomments
Job Hunting With CancerAs a young adult with bladder cancer, one of the biggest hurdles has been balancing my career and my cancer. I needed to continue working out of necessity as I...reactions1comment
One Woman's Bladder Tumor Resection ExperienceMy son picked me up for the 45-minute drive to the surgical pavilion at UW Medical Center. We arrived 10 minutes past check-in time, and everything was fine. I told...reactions4comments
Common Ostomy Questions Answered by an OstomateWhen you or someone close to you finds out they will need surgery to create an ostomy (stoma), it can be a very scary thing to hear. The main reason...reactionscomments
Illness, Self Care, and Self Neglect!I should be the queen of self-care by now. You would think so, wouldn't you? But I'm not... I'm human and I struggle with a lot of things. My mental...reactions13comments
Life After Bladder Cancer: Taking Time to ProcessI am four years on from my cancer diagnosis and surgery. I am, as of today, still cancer-free. I always say you are only as good as your last scan...reactions2comments
Using a Co-Pay Assistance ProgramImmunotherapy is an incredibly expensive cancer treatment. On average, it can cost a patient over 100,000 dollars per year in drug costs alone for this life-saving treatment. Oftentimes due to...reactions1comment
Dale's Story: Surviving Bladder Cancer and a Radical CystectomyDale shared insight on his journey and how this experience has informed how he carries himself through life after bladder cancer and a radical cystectomy. I was diagnosed with stage...reactions4comments
Diagnosed 2-17-22Hi I was diagnosed with Bladder cancer 2-17-22, I am a 69-year-old male (NSS) I was a smoker for 42 years, I quit December 30 2004 at 5pm Thank God...reactions20comments
My Adventures in Gemcitabine Induction Therapy: Week 1Tomorrow I begin 6 weeks of intravesical chemotherapy induction with gemcitabine. I am feeling less anxious than I did two weeks ago. After all, I have been too busy planning...reactions24comments
Managing Scan and Medical AnxietyPrior to my bladder cancer journey, I was probably the weakest person I knew when it came to anything medical. In the later years before her passing, my mother-in-law was...reactions3comments
Ask the Advocate: Advice around Reconstructive Bladder SurgeryWe asked the ostomates among our patient leader team, "what advice would you give someone who was feeling unsure about reconstructive bladder surgery?" Our group shed some invaluable, down-to-earth perspectives...reactions1comment