Get a NotebookMedical appointments are hectic. Often times you are meeting with several people and covering many different issues in what feels like a rush. I know my oncologist can seem like...reactions2comments
ongoing bladder cancerIn Febuary of 2007 I was lifting a large ladder over a fence to return it to my neighbor. I felt a great pain in my stomach and a feeling...reactions4comments
I HAVE WHAT???I thought I had a UTI until the pain in my lower stomach (right where the bladder was) made me pause. This was April, 2009 and I was retiring in...reactions3comments
Both Sides NowLooking Back Through Both Sides Now by Joni Mitchell. Great song for this old hippie guitar man. For my purposes today let's substitute cancer for clouds. Think it applies to...reactions8comments
Self-Advocacy After a Bladder Cancer DiagnosisI was diagnosed with late-stage aggressive bladder cancer in September 2017. The months that followed were a whirlwind in many respects. On one hand, there was always that next consultation...reactions4comments
Spreading Joy and Cheer During Bladder Cancer CareIt's the most wonderful time of the year for many people. But for you, it might be the most solitary time. Perhaps you live too far away from your family...reactions2comments
New Diagnosis of Urethral Cancer - What????2/22/22 Yesterday I was diagnosed with urethral cancer. Yes, I can say that again - urethral cancer. One of the rarest of cancer’s many forms. I’m a 62 year old...reactions17comments
UTI’s-NOT! CANCER-YES!!!I was dealing with my 92-year-old Dad as he was dying of kidney cancer. With raising two grandchildren and driving to and from my Dad, I was having recurrent bladder...reactions9comments
Life After Bladder Cancer: Grieving My Old SelfI was diagnosed with stage 4, muscle-invasive bladder cancer in the fall of 2017. In November 2017, I underwent a total pelvic exenteration (TPE) with an aim to cure the...reactions2comments
The Drag and Delay to a Bladder Cancer DiagnosisFrom weeks to months to years, each bladder cancer diagnosis is unique. It feels like a long slog, regardless of the length of time. Curious about the process in this...reactions7comments
No Evidence of DiseaseIt finally happened. Two years into treatment and I received the scan report I had been hoping for. The report read "no evidence of disease recurrence or progression". This means...reactions15comments
My DadHi everyone my name is Sharron and my dad has upper tract urothelial carcinoma. He had cancer in his bladder and that was removed. He has prostate cancer which they...reactions6comments
World Bladder Cancer Patient Coalition SurveyIn March of 2020, I was invited to join the patient advisory board for the World Bladder Cancer Patient Coalition. The board consists of members across the globe, with various...reactions2comments
A long road to a diagnosis.In July 2021, I went to my doctor with UTI symptoms (burning when peeing) and for the next 6 months I had many urine tests done, ultra sounds, X-rays &...reactions4comments
For The Next MeWhen I first started patient advocacy I was told I needed to find my "why." My reason for advocacy is what would make my work genuine and ensure others would...reactions1comment
My Ongoing Bladder Cancer JourneyOn May 20, 2020 I was admitted to a Miami hospital with ischemia colitis. While I was there, I was asked if I wanted the cystoscopy that had been scheduled...reactions26comments
Mr. Ray Graffin or just RayI retired from a 35 year career as a radiologic technologist, and at 60 went to driving a school bus for the past 13 years. I enjoyed it very much...reactions9comments
Awaiting Urine DiversionI have only one kidney after the other was removed. An aggressive cancer was found in the ureter and after removal I had 5 months of chemotherapy. The cancer regrettably...reactions2comments
I Have Got This But Not Every Day!My name is Laura. I live with two stomas - a colostomy and a urostomy. A colostomy for the removal of feces and a urostomy for the removal of urine...reactions2comments
Would I Thrive in Spring Like the Bulbs?Today my husband and I planted the bulbs in our pots in the garden which will bloom in spring. For many, this is a yearly activity which is probably just...reactions8comments
