Both Sides NowLooking Back Through Both Sides Now by Joni Mitchell. Great song for this old hippie guitar man. For my purposes today let's substitute cancer for clouds. Think it applies to...Reactions0reactionsComments8 comments
Self-Advocacy After a Bladder Cancer DiagnosisI was diagnosed with late-stage aggressive bladder cancer in September 2017. The months that followed were a whirlwind in many respects. On one hand, there was always that next consultation...Reactions0reactionsComments4 comments
Spreading Joy and Cheer During Bladder Cancer CareIt's the most wonderful time of the year for many people. But for you, it might be the most solitary time. Perhaps you live too far away from your family...Reactions0reactionsComments2 comments
New Diagnosis of Urethral Cancer - What????2/22/22 Yesterday I was diagnosed with urethral cancer. Yes, I can say that again - urethral cancer. One of the rarest of cancer’s many forms. I’m a 62 year old...Reactions0reactionsComments17 comments
UTI’s-NOT! CANCER-YES!!!I was dealing with my 92-year-old Dad as he was dying of kidney cancer. With raising two grandchildren and driving to and from my Dad, I was having recurrent bladder...Reactions0reactionsComments9 comments
Life After Bladder Cancer: Grieving My Old SelfI was diagnosed with stage 4, muscle-invasive bladder cancer in the fall of 2017. In November 2017, I underwent a total pelvic exenteration (TPE) with an aim to cure the...Reactions0reactionsComments2 comments
The Drag and Delay to a Bladder Cancer DiagnosisFrom weeks to months to years, each bladder cancer diagnosis is unique. It feels like a long slog, regardless of the length of time. Curious about the process in this...Reactions0reactionsComments7 comments
No Evidence of DiseaseIt finally happened. Two years into treatment and I received the scan report I had been hoping for. The report read "no evidence of disease recurrence or progression". This means...Reactions0reactionsComments15 comments
My DadHi everyone my name is Sharron and my dad has upper tract urothelial carcinoma. He had cancer in his bladder and that was removed. He has prostate cancer which they...Reactions0reactionsComments6 comments
World Bladder Cancer Patient Coalition SurveyIn March of 2020, I was invited to join the patient advisory board for the World Bladder Cancer Patient Coalition. The board consists of members across the globe, with various...Reactions0reactionsComments2 comments
A long road to a diagnosis.In July 2021, I went to my doctor with UTI symptoms (burning when peeing) and for the next 6 months I had many urine tests done, ultra sounds, X-rays &...Reactions0reactionsComments4 comments
For The Next MeWhen I first started patient advocacy I was told I needed to find my "why." My reason for advocacy is what would make my work genuine and ensure others would...Reactions0reactionsComments1 comments
My Ongoing Bladder Cancer JourneyOn May 20, 2020 I was admitted to a Miami hospital with ischemia colitis. While I was there, I was asked if I wanted the cystoscopy that had been scheduled...Reactions0reactionsComments26 comments
Mr. Ray Graffin or just RayI retired from a 35 year career as a radiologic technologist, and at 60 went to driving a school bus for the past 13 years. I enjoyed it very much...Reactions0reactionsComments9 comments
Awaiting Urine DiversionI have only one kidney after the other was removed. An aggressive cancer was found in the ureter and after removal I had 5 months of chemotherapy. The cancer regrettably...Reactions0reactionsComments2 comments
I Have Got This But Not Every Day!My name is Laura. I live with two stomas - a colostomy and a urostomy. A colostomy for the removal of feces and a urostomy for the removal of urine...Reactions0reactionsComments2 comments
Would I Thrive in Spring Like the Bulbs?Today my husband and I planted the bulbs in our pots in the garden which will bloom in spring. For many, this is a yearly activity which is probably just...Reactions0reactionsComments8 comments
Hematuria and Bladder CancerA bladder cancer diagnosis can come about in different ways. You may have symptoms that lead to testing. Your doctor may find signs during a routine exam. Other times, treating...Reactions0reactionsComments11 comments
Hiking with an OstomyThe weather has finally turned chilly and the leaves are putting on their best show of fall colors. With the great outdoors calling my name I decided to take back...Reactions0reactionsComments1 comments
What's next?Hi- I have been following your website for about six months and I am grateful that it exists. I have been a bladder cancer patient since July 2007 and am...Reactions0reactionsComments11 comments
