Dale's Story: Surviving Bladder Cancer and a Radical CystectomyDale shared insight on his journey and how this experience has informed how he carries himself through life after bladder cancer and a radical cystectomy. I was diagnosed with stage...reactions4comments
Diagnosed 2-17-22Hi I was diagnosed with Bladder cancer 2-17-22, I am a 69-year-old male (NSS) I was a smoker for 42 years, I quit December 30 2004 at 5pm Thank God...reactions21comments
My Adventures in Gemcitabine Induction Therapy: Week 1Tomorrow I begin 6 weeks of intravesical chemotherapy induction with gemcitabine. I am feeling less anxious than I did two weeks ago. After all, I have been too busy planning...reactions24comments
Managing Scan and Medical AnxietyPrior to my bladder cancer journey, I was probably the weakest person I knew when it came to anything medical. In the later years before her passing, my mother-in-law was...reactions3comments
Ask the Advocate: Advice around Reconstructive Bladder SurgeryWe asked the ostomates among our patient leader team, "what advice would you give someone who was feeling unsure about reconstructive bladder surgery?" Our group shed some invaluable, down-to-earth perspectives...reactions1comment
Get a NotebookMedical appointments are hectic. Often times you are meeting with several people and covering many different issues in what feels like a rush. I know my oncologist can seem like...reactions2comments
ongoing bladder cancerIn Febuary of 2007 I was lifting a large ladder over a fence to return it to my neighbor. I felt a great pain in my stomach and a feeling...reactions4comments
I HAVE WHAT???I thought I had a UTI until the pain in my lower stomach (right where the bladder was) made me pause. This was April, 2009 and I was retiring in...reactions3comments
Both Sides NowLooking Back Through Both Sides Now by Joni Mitchell. Great song for this old hippie guitar man. For my purposes today let's substitute cancer for clouds. Think it applies to...reactions8comments
Self-Advocacy After a Bladder Cancer DiagnosisI was diagnosed with late-stage aggressive bladder cancer in September 2017. The months that followed were a whirlwind in many respects. On one hand, there was always that next consultation...reactions4comments
Spreading Joy and Cheer During Bladder Cancer CareIt's the most wonderful time of the year for many people. But for you, it might be the most solitary time. Perhaps you live too far away from your family...reactions2comments
New Diagnosis of Urethral Cancer - What????2/22/22 Yesterday I was diagnosed with urethral cancer. Yes, I can say that again - urethral cancer. One of the rarest of cancer’s many forms. I’m a 62 year old...reactions17comments
UTI’s-NOT! CANCER-YES!!!I was dealing with my 92-year-old Dad as he was dying of kidney cancer. With raising two grandchildren and driving to and from my Dad, I was having recurrent bladder...reactions9comments
Life After Bladder Cancer: Grieving My Old SelfI was diagnosed with stage 4, muscle-invasive bladder cancer in the fall of 2017. In November 2017, I underwent a total pelvic exenteration (TPE) with an aim to cure the...reactions2comments
The Drag and Delay to a Bladder Cancer DiagnosisFrom weeks to months to years, each bladder cancer diagnosis is unique. It feels like a long slog, regardless of the length of time. Curious about the process in this...reactions7comments
No Evidence of DiseaseIt finally happened. Two years into treatment and I received the scan report I had been hoping for. The report read "no evidence of disease recurrence or progression". This means...reactions15comments
My DadHi everyone my name is Sharron and my dad has upper tract urothelial carcinoma. He had cancer in his bladder and that was removed. He has prostate cancer which they...reactions6comments
World Bladder Cancer Patient Coalition SurveyIn March of 2020, I was invited to join the patient advisory board for the World Bladder Cancer Patient Coalition. The board consists of members across the globe, with various...reactions2comments
A long road to a diagnosis.In July 2021, I went to my doctor with UTI symptoms (burning when peeing) and for the next 6 months I had many urine tests done, ultra sounds, X-rays &...reactions4comments
For The Next MeWhen I first started patient advocacy I was told I needed to find my "why." My reason for advocacy is what would make my work genuine and ensure others would...reactions1comment
