The Emotional Impact of New Treatment DevelopmentsIt was just 5 years from the time my first husband died of bladder cancer in 2014 until 2019. It’s difficult to express just how dramatically the metastatic bladder cancer...reactions1comment
Making Bladder Cancer Treatment DecisionsCancer treatment is a buffet of choices. Each one comes with a bounty of pros and cons. When I was diagnosed, my urologist talked to me about grade and staging...reactionscomments
Using a Night Storage Urine BagWhen I had my urostomy surgery back at the end of 2017, I didn't know anyone who had a stoma. Everything was new to me, and I was very much...reactions2comments
I Was Diagnosed with Bladder Cancer at 28Bladder cancer should typically target older white men who have smoked. Outside of that usual range, it still tends to be diagnosed in those much older. I have noticed in...reactions12comments
Improving How We Search for Clinical TrialsWhen I first delved into learning about clinical trials for bladder cancer, I was under immense duress. The standard chemotherapy was not shrinking my husband Ahmad’s tumors and remaining options...reactionscomments
How Might a Surge of Coronavirus Patients Impact Access for Bladder Cancer Patients?I am in one of the epicenters of the coronavirus, the San Francisco Bay Area. The cruise ship with a coronavirus outbreak just docked in Oakland today. By the hour...reactionscomments
Thoughts Before My First 6-Month PET ScanI find myself in an entirely new situation. So far during this "journey," I have been having scans every 3 months, and this is the first time we have left...reactionscomments
Bladder Cancer, Masculinity, and Driving in the SnowDriving in inclement weather is a challenge for anyone. You can never be sure of what is ahead of you. You are never fully in control. Often times it would...reactionscomments
What Cancer Has Given MeI suppose that title is a little misleading. Cancer is a monster that takes and kills. Any gift from my encounter with this malevolent force came from surviving it, not...reactions1comment
Laura's Bladder Cancer Story: Working and Traveling with 2 StomasThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. To kick it off, we talked to Laura who shares her bladder cancer diagnosis story and her...reactions1comment
What Is the Culture Surrounding Bladder Cancer?As I became more deeply involved in bladder cancer patient advocacy, I read and heard a lot about the culture surrounding breast cancer. A few decades ago, breast cancer was...reactionscomments
Living with No Evidence of DiseaseWhat happens when you are told, "Congratulations, you have no evidence of disease!"? Of course, you are elated, relieved, happy, and perhaps a little overwhelmed and a bit confused. Terminal...reactionscomments
Fighting Through the Mental FogI drive a truck for a living. 12 to 14 hours a day, 6 days a week. I have been all over the country, but Newton County, Indiana has fog...reactions6comments
Your Questions? Answered! Hear From Bladder Cancer ResearchersInterested in hearing what experts have to say about bladder cancer treatments? We asked our Facebook community, "What questions do you have for a bladder cancer researcher?" After gathering your...reactionscomments
Speaking Out About the Unspoken: Sex After CystectomyBefore I had my radical cystectomy (bladder removal surgery) in January of 2017, I had an appointment with my doctor to discuss the procedure. Right at the very end of...reactions2comments
Living with No RegretsI accepted an invitation to interview for a maintenance manager position with the largest trucking company in the nation. The initial meeting was held in Gary, Indiana. The site manager...reactions1comment
The "Not So Nice" Things I Wish I'd Known Before My CystectomyBefore my cystectomy, I read every piece of information I was given, over and over. I joined online support group to engage with others like myself: a woman about to...reactions4comments
How Bladder Cancer is Different for People of ColorCancer development, treatment, and outcomes are tricky topics to understand. The underlying reasons why a person gets cancer or how they might respond to treatment are often unknown and depend...reactionscomments
Choosing HopeDeath row - Indiana is a death sentence state. For several years, I was a volunteer chaplain on the row. According to the men on the cell block, I was...reactionscomments
A Different View: Reflecting on How I Told My FamilyOur kids were teens when I was diagnosed. Decisions had to made about what and when to tell them about my cancer. These are hard decisions and choices. There is...reactionscomments