I Was Diagnosed with Bladder Cancer at 28Bladder cancer should typically target older white men who have smoked. Outside of that usual range, it still tends to be diagnosed in those much older. I have noticed in...Reactions0reactionsComments12 comments
Improving How We Search for Clinical TrialsWhen I first delved into learning about clinical trials for bladder cancer, I was under immense duress. The standard chemotherapy was not shrinking my husband Ahmad’s tumors and remaining options...Reactions0reactionsComments0 comments
How Might a Surge of Coronavirus Patients Impact Access for Bladder Cancer Patients?I am in one of the epicenters of the coronavirus, the San Francisco Bay Area. The cruise ship with a coronavirus outbreak just docked in Oakland today. By the hour...Reactions0reactionsComments0 comments
Thoughts Before My First 6-Month PET ScanI find myself in an entirely new situation. So far during this "journey," I have been having scans every 3 months, and this is the first time we have left...Reactions0reactionsComments0 comments
Bladder Cancer, Masculinity, and Driving in the SnowDriving in inclement weather is a challenge for anyone. You can never be sure of what is ahead of you. You are never fully in control. Often times it would...Reactions0reactionsComments0 comments
What Cancer Has Given MeI suppose that title is a little misleading. Cancer is a monster that takes and kills. Any gift from my encounter with this malevolent force came from surviving it, not...Reactions0reactionsComments1 comments
Laura's Bladder Cancer Story: Working and Traveling with 2 StomasThe Editorial Team at BladderCancer.net is highlighting people in the bladder cancer community. To kick it off, we talked to Laura who shares her bladder cancer diagnosis story and her...Reactions0reactionsComments1 comments
What Is the Culture Surrounding Bladder Cancer?As I became more deeply involved in bladder cancer patient advocacy, I read and heard a lot about the culture surrounding breast cancer. A few decades ago, breast cancer was...Reactions0reactionsComments0 comments
Living with No Evidence of DiseaseWhat happens when you are told, "Congratulations, you have no evidence of disease!"? Of course, you are elated, relieved, happy, and perhaps a little overwhelmed and a bit confused. Terminal...Reactions0reactionsComments0 comments
Fighting Through the Mental FogI drive a truck for a living. 12 to 14 hours a day, 6 days a week. I have been all over the country, but Newton County, Indiana has fog...Reactions0reactionsComments6 comments
Your Questions? Answered! Hear From Bladder Cancer ResearchersInterested in hearing what experts have to say about bladder cancer treatments? We asked our Facebook community, "What questions do you have for a bladder cancer researcher?" After gathering your...Reactions0reactionsComments0 comments
Speaking Out About the Unspoken: Sex After CystectomyBefore I had my radical cystectomy (bladder removal surgery) in January of 2017, I had an appointment with my doctor to discuss the procedure. Right at the very end of...Reactions0reactionsComments2 comments
Living with No RegretsI accepted an invitation to interview for a maintenance manager position with the largest trucking company in the nation. The initial meeting was held in Gary, Indiana. The site manager...Reactions0reactionsComments1 comments
The "Not So Nice" Things I Wish I'd Known Before My CystectomyBefore my cystectomy, I read every piece of information I was given, over and over. I joined online support group to engage with others like myself: a woman about to...Reactions0reactionsComments4 comments
How Bladder Cancer is Different for People of ColorCancer development, treatment, and outcomes are tricky topics to understand. The underlying reasons why a person gets cancer or how they might respond to treatment are often unknown and depend...Reactions0reactionsComments0 comments
Choosing HopeDeath row - Indiana is a death sentence state. For several years, I was a volunteer chaplain on the row. According to the men on the cell block, I was...Reactions0reactionsComments0 comments
A Different View: Reflecting on How I Told My FamilyOur kids were teens when I was diagnosed. Decisions had to made about what and when to tell them about my cancer. These are hard decisions and choices. There is...Reactions0reactionsComments0 comments
Preparing for Unrelated Major Surgery with a StomaI recently had to have a total knee replacement. I have needed this surgery for over 2 years, but due to having bladder cancer and needing a radical cystectomy, it...Reactions0reactionsComments0 comments
My Bladder Cancer Journal Giveaway (Now Closed)From doctor’s appointments to medications to treatment plans, keeping track of everything related to your bladder cancer can feel overwhelming. Staying organized and having a place to keep track of...Reactions0reactionsComments0 comments
Project Koru: Remembering That Life Is More Than Just Bladder CancerIn part one of this blog, I discussed my struggles getting to Maui and how anxiety tried to hold me back. Maui was the place I developed human connections, personal...Reactions0reactionsComments0 comments