Re-Staging My Bladder CancerIt is strange to think that 2 years ago we really were unsure what my future would look like with bladder cancer...reactions5comments
Life After Bladder Cancer: Grieving My Old SelfI was diagnosed with stage 4, muscle-invasive bladder cancer in the fall of 2017. In November 2017, I underwent a total pelvic...reactions2comments
Being Nominated for a WEGO Health AwardIn June, an email popped up with the subject line, "Congratulations, you've been nominated!" The first thing I thought was, nominated for...reactions2comments
Bladder Cancer Treatment: Immunotherapy vs ChemotherapyPeople may know chemotherapy as a cancer treatment more readily than immunotherapy. But immunotherapy is gaining traction, and for good reason. Immunotherapy...reactions1comment
Space and TimeYou may have noticed a pattern if you have read some of my articles. I write about the mental health side of...reactions2comments
Coming Back AroundIn 2008 at age 55 I was diagnosed with stage IV Prostate Cancer, heart attack in 2010, bladder cancer diagnosed in 2015...reactions7comments
BCG or UTI?Have you recently started BCG treatments for non-invasive bladder cancer? There are many possible side effects of this treatment: The common theme...reactions3comments
The Need for SpeedThe rapidity of my admission and bladder cancer surgery was an eye-opening experience. I had a cystoscopy and biopsy then set a...reactions2comments
Ask the Advocate: Advice around Reconstructive Bladder SurgeryWe asked the ostomates among our patient leader team, "what advice would you give someone who was feeling unsure about reconstructive bladder...reactions1comment
Per Mom: On Bacille Calmette-Guerin (BCG)Mom always told me that she loved how I explained things. She said I had a way of making people understand. An...reactions16comments
Perks of Being an OstomateTwo years ago I would have said there was absolutely nothing positive about having a urostomy. It was uncomfortable, always a hassle...reactions11comments
Handling Awkward Questions from Children About an OstomyI became a Nana this year to the gorgeous Jackson James, but I have been a step-Nana for over a year, and...reactions6comments
Jacquie's story: a bladder cancer survivorMy story with bladder cancer began in 2005, at age 47. I began having symptoms similar to those of a urinary tract...reactions1comment
Getting HelpOne thing I wish I had understood earlier in my cancer journey (and life in general) is it is OK to not...reactions6comments
Speaking at the Bladder Cancer RetreatBack in September, I had the absolute honor of speaking at the 2021 North Carolina Bladder Cancer Retreat. It was incredibly exciting...reactions1comment
Setting BoundariesWhen I started sharing my story online, I never anticipated just how many people would start following along. In just a few...reactions1comment
Cancer, Conversation, and LanguageVictim. Sufferer. Fight. Fighter. Brave. Beaten. All words associated with cancer. My question is - do we have this all wrong? It...reactions4comments
Using a Co-Pay Assistance ProgramImmunotherapy is an incredibly expensive cancer treatment. On average, it can cost a patient over 100,000 dollars per year in drug costs...reactions1comment
My Thoughts on Raising Ostomy AwarenessIronically, when I received my bladder cancer diagnosis, I had already been advocating and doing awareness campaigns around the topic of ostomies...reactions1comment
Preparing for a Cystectomy: The Practical PieceIf you are reading this article and you are going to be having a cystectomy surgery or have the surgery already scheduled...reactionscomments
