Experiencing Chemo for the First Time with a UrostomyNothing about my bladder cancer journey has been typical. Most patients, at least here in the US from what I've read, receive chemo first and then have their radical cystectomy...Reactions0reactionsComments5 comments
The Worst Phone Call I Ever MadeSo many aspects of the initial part of my cancer journey are blurry. There was too much pain, too much confusion, and way too much medication to remember things fully...Reactions0reactionsComments2 comments
Personality and Cancer Care SurveyAre you an adult with a current or past cancer diagnosis? Are you interested in learning more about your personality? If so, you may be qualified to participate in an...Reactions0reactionsComments0 comments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report providing care or assistance to someone with a...Reactions0reactionsComments0 comments
Funny Ostomy QuestionsOstomies are strange things. I’ll admit when told I would be getting a urostomy, I had to immediately google what it was and I was dumbstruck. A piece of intestine...Reactions0reactionsComments3 comments
Being Your Own AdvocatePatient advocacy is a cause near and dear to my heart. This task is most often handed to the patient’s caregiver, meaning their spouse, close family, or parents, sometimes even...Reactions0reactionsComments1 comments
Medical PTSD In People With CancerFor many people, cancer is the worst fear of all. Often, just the word cancer leads people to imagine hair loss, chemotherapy, nausea, and other physical symptoms. However, the physical...Reactions0reactionsComments0 comments
Meet Jeri & Learn About Life With an Indiana PouchThose who undergo bladder removal surgery (a radical cystectomy) to treat their bladder cancer are faced with another decision: which type of urinary diversion should they choose? From the ileal...Reactions0reactionsComments0 comments
One Step Forward, Two Steps BackNo, this is not a case of opposites attracting. (For those who may not know, reference to Paula Abdul's 1988 hit "Opposites Attract.") Today, we're talking about follow-up appointments. When...Reactions0reactionsComments1 comments
Bladder Cancer Must-HavesI participate in a lot of online circles for bladder cancer and the topic of what comfort items are must-haves comes up quite a bit. What to take to the...Reactions0reactionsComments0 comments
What Is It Like Being on Immunotherapy?Immunotherapy feels like the new kid on the block when it comes to cancer treatment. And in the world of medicine, it really is. Keytruda was approved for use in...Reactions0reactionsComments0 comments
Dealing with Unsupportive People During Your Cancer JourneyHaving a team of supporters during your cancer journey is extremely beneficial to your physical and mental health. As I stated in a prior article, building this team is of...Reactions0reactionsComments1 comments
Weight Struggles With Bladder CancerMore often we tend to hear of people struggling to keep weight on while going through cancer treatment. Chemo and radiation can cause lack of appetite, nausea, and fatigue, all...Reactions0reactionsComments0 comments
The Inner Turmoil of Being a Bladder Cancer SurvivorI’ve heard many people talk about “survivor's guilt,” but I never really experienced it - that was until just recently. Earlier this year, I found out that a very dear...Reactions0reactionsComments2 comments
BladderCancer.net is 3 Years Old!Three years ago, BladderCancer.net was born, creating a unique online space for people living with and caring for bladder cancer to connect. Since then, we have published over 700 articles...Reactions0reactionsComments0 comments
The Lowdown on MVAC (Part 1)About 4 and a half months into my diagnosis, I had my first office visit with my oncologist. I met him a few times while I was an inpatient after...Reactions0reactionsComments2 comments
An Immunotherapy Clinical Trial as My First-line TreatmentIf you are familiar with my cancer story, you know that it has been ANYTHING but typical. From my age, stage of diagnosis, recovery story, even my treatment plan. Nothing...Reactions0reactionsComments1 comments
Experiencing Disappointment During COVID-19In a previous article, I talked about the changes in support meetings through this pandemic. The topic of disappointment, I believe, goes hand in hand with this. As I've shared...Reactions0reactionsComments0 comments
Why I Stopped Waiting to Recover from Neobladder SurgerySeven years ago, I was faced with the choice of which urinary diversion to have. IP? Neobladder? Pouch? Each option has different surgical complexities, different recovery issues, and different life-long...Reactions0reactionsComments14 comments
What Would The Non-Survivors Tell Us?We hear a lot from bladder cancer survivors — about their stories, their recommendations, their fears, and their triumphs over cancer. But what about the people who don’t survive? The...Reactions0reactionsComments0 comments