Being Your Own AdvocatePatient advocacy is a cause near and dear to my heart. This task is most often handed to the patient’s caregiver, meaning their spouse, close family, or parents, sometimes even... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments1 comments
Medical PTSD In People With CancerFor many people, cancer is the worst fear of all. Often, just the word cancer leads people to imagine hair loss, chemotherapy, nausea, and other physical symptoms. However, the physical... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Meet Jeri & Learn About Life With an Indiana PouchThose who undergo bladder removal surgery (a radical cystectomy) to treat their bladder cancer are faced with another decision: which type of urinary diversion should they choose? From the ileal... By Alina Ahsan4 min readBookmark for laterReactions 0 reactions Comments0 comments
One Step Forward, Two Steps BackNo, this is not a case of opposites attracting. (For those who may not know, reference to Paula Abdul's 1988 hit "Opposites Attract.") Today, we're talking about follow-up appointments. When... By Liz Hiles3 min readBookmark for laterReactions 0 reactions Comments1 comments
Bladder Cancer Must-HavesI participate in a lot of online circles for bladder cancer and the topic of what comfort items are must-haves comes up quite a bit. What to take to the... By Liz Hiles3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is It Like Being on Immunotherapy?Immunotherapy feels like the new kid on the block when it comes to cancer treatment. And in the world of medicine, it really is. Keytruda was approved for use in... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing with Unsupportive People During Your Cancer JourneyHaving a team of supporters during your cancer journey is extremely beneficial to your physical and mental health. As I stated in a prior article, building this team is of... By Linda Urbanski4 min readBookmark for laterReactions 0 reactions Comments1 comments
Weight Struggles With Bladder CancerMore often we tend to hear of people struggling to keep weight on while going through cancer treatment. Chemo and radiation can cause lack of appetite, nausea, and fatigue, all... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Inner Turmoil of Being a Bladder Cancer SurvivorI’ve heard many people talk about “survivor's guilt,” but I never really experienced it - that was until just recently. Earlier this year, I found out that a very dear... By Shirley Norris2 min readBookmark for laterReactions 0 reactions Comments2 comments
BladderCancer.net is 3 Years Old!Three years ago, BladderCancer.net was born, creating a unique online space for people living with and caring for bladder cancer to connect. Since then, we have published over 700 articles... By Alina Ahsan1 min readBookmark for laterReactions 0 reactions Comments0 comments
The Lowdown on MVAC (Part 1)About 4 and a half months into my diagnosis, I had my first office visit with my oncologist. I met him a few times while I was an inpatient after... By Liz Hiles4 min readBookmark for laterReactions 0 reactions Comments2 comments
An Immunotherapy Clinical Trial as My First-line TreatmentIf you are familiar with my cancer story, you know that it has been ANYTHING but typical. From my age, stage of diagnosis, recovery story, even my treatment plan. Nothing... By Brittney Tellekamp3 min readBookmark for laterReactions 0 reactions Comments1 comments
Experiencing Disappointment During COVID-19In a previous article, I talked about the changes in support meetings through this pandemic. The topic of disappointment, I believe, goes hand in hand with this. As I've shared... By Liz Hiles4 min readBookmark for laterReactions 0 reactions Comments0 comments
Why I Stopped Waiting to Recover from Neobladder SurgerySeven years ago, I was faced with the choice of which urinary diversion to have. IP? Neobladder? Pouch? Each option has different surgical complexities, different recovery issues, and different life-long... By Paul Hebert4 min readBookmark for laterReactions 0 reactions Comments14 comments
What Would The Non-Survivors Tell Us?We hear a lot from bladder cancer survivors — about their stories, their recommendations, their fears, and their triumphs over cancer. But what about the people who don’t survive? The... By Renata Louwers3 min readBookmark for laterReactions 0 reactions Comments0 comments
Bladder Cancer Connections via the Worldwide WebWhen I was diagnosed over 4 years ago at age 40, I had no clue that bladder cancer was even a thing. I was floored. Immediately I began seeking out... By Liz Hiles3 min readBookmark for laterReactions 0 reactions Comments1 comments
BCG Manufacturer To Triple Production of Tice® BCG With New FacilityPharmaceutical company Merck has announced that it is building a new manufacturing facility so it can significantly expand production of Tice® BCG (BCG live for intravesical use), a drug used... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Active with an Ostomy: My Experience and Tips on Getting StartedBefore the symptoms of bladder cancer were revealed in my body, I led an active life and was getting in shape again. I had already experienced hardships and medical stress... By Liz Hiles3 min readBookmark for laterReactions 0 reactions Comments4 comments
What to Buy and What to Try for Your Upcoming RC/ICWe all enter a bladder cancer removal procedure from differing ages, genders, a variety of pre-surgery treatments, and medical advice. I found the below info helpful, but I was in my... By Linda Urbanski4 min readBookmark for laterReactions 0 reactions Comments1 comments
Those First Few Months of My Small Cell Bladder CancerFor those of you who don’t know me, my name is Anita, and in 2016, I was diagnosed with small cell bladder cancer. I remember feeling utterly dumbstruck, scared, frightened... By Anita Brown3 min readBookmark for laterReactions 0 reactions Comments1 comments