Being Tested for Lynch SyndromeTowards the end of my treatment, I had a conversation with my oncologist about genetic testing. Due to my young age, they wanted me to be tested for Lynch Syndrome...Reactions0reactionsComments1 comments
Radical Cystectomy and Bowel Issues Part 2: The ColonoscopyRead Part 1 about Shirley's ongoing bowel problems after radical cystectomy. After waiting over 3 weeks for my so-called "emergency" gastroenterology appointment to come through (due to COVID-19 delays), I...Reactions0reactionsComments5 comments
Don't Waste Today Looking BackwardThis is my 3rd (maybe 4th) attempt at writing this piece. I have put down several paragraphs only to highlight and delete it all. I know what I want to...Reactions0reactionsComments1 comments
Fighting Cancer TogetherAlmost exactly a year before my diagnosis, my mom called me on Sunday afternoon and delivered the worst news imaginable. “They found cancer.” She had been diagnosed with thyroid cancer...Reactions0reactionsComments1 comments
The Opportunity to Change Your Perspective on Bladder CancerBefore you read this, I would like to ask you to take a moment. Think about that moment when you realized you were experiencing symptoms. That moment when you received...Reactions0reactionsComments1 comments
Scary PET Scan Results: Is This the Start of the End?I am in disbelief! Let me explain why. I was diagnosed at 46 with small cell bladder cancer. The diagnosis was grim. I just turned 50 and had started to feel...Reactions0reactionsComments10 comments
Bladder Cancer Awareness Month – Time to Use Our VoicesMay is Bladder Cancer Awareness Month! Now more than ever, let us come together and use our voices to bring more awareness around the importance of bladder cancer. Even though...Reactions0reactionsComments0 comments
Why Losing Hair Means So MuchMany types of cancer are associated with physical changes, ranging from surgery and reconstruction to weight loss or gain. Oftentimes, individuals confronting physical changes find these very distressing. Someone may...Reactions0reactionsComments1 comments
Let's Go SwimmingThis may be an odd topic as the temperatures are dropping in the northern hemisphere, but for me, the cold weather season is when I enjoy visiting my local indoor...Reactions0reactionsComments3 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with bladder cancer. New here? We invite you to explore...Reactions0reactionsComments0 comments
Finding Community: Helping Others with Bladder CancerWho would have thought that having cancer would change my life in a positive way? But it has. I am certainly not saying that I am happy I had cancer...Reactions0reactionsComments27 comments
American Cancer Society Releases 2021 Report on CancerThe American Cancer Society (ACS) has released its 2021 report on cancer, called Cancer Facts and Figures 2021. The data in this report is 2 to 4 years behind the...Reactions0reactionsComments2 comments
Radical Cystectomy and Bowel Issues (Part 1)After having had your radical cystectomy surgery, the focus of attention soon comes to the subject of bowel movements. This is the case after most major surgeries because after having...Reactions0reactionsComments2 comments
World Cancer Day 2021: What We Wish Others KnewOver the years, we have had countless conversations in our community about what we wish people knew about life with cancer. We have talked about the things that others so...Reactions0reactionsComments2 comments
Prioritizing My Mental HealthFighting cancer is usually seen as a physical fight. Your body is being attacked and through medicine, surgery, and sometimes brute strength, you fight back against the disease. Medical teams...Reactions0reactionsComments1 comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...Reactions0reactionsComments1 comments
It Wasn't Just Menstrual CrampsIn late spring of 2019, I knew something was up. I was experiencing what I thought were heavy periods and spotting along with fatigue and just constant discomfort that ranged...Reactions0reactionsComments5 comments
The Invisibility and Stigma of Chronic PainPain can be classified as an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain cannot be immediately seen. Because of this, it is possible...Reactions0reactionsComments1 comments
When Bladder Cancer Isn't Just OverAt the end of this month, February 2021, I am officially 4 years from the end of my treatments. I have not been in active treatment for FOUR YEARS. Sometimes...Reactions0reactionsComments4 comments
Finding Credible Health Information OnlineThere’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and beyond, advice about your health is at every...Reactions0reactionsComments1 comments