More Lessons I Have LearnedSee Part 1: Lessons I Have Learned to read about some more of the takeaways Anita shares from her experiences with bladder cancer. There are many things people will say...reactions8comments
The Pros and Cons of the CystectomyYou hear the news and it feels so black and white. When doctors tell you it’s time to remove your bladder, it’s hard not to be afraid. Losing an organ...reactionscomments
Five Helpful Tips for CaregiversReceiving a diagnosis of bladder cancer can be a life-altering experience, not only for the person diagnosed but also for the spouse, child, parent or friend who becomes the person’s...reactionscomments
Bladder Cancer Anxieties: Financial StressIn this series, we discuss causes of anxiety for those facing a physical illness like bladder cancer and its side effects. Phrases in quotes are the words of our community...reactionscomments
Changes Post-Operation with a NeobladderYou came through surgery okay. Your recovery has been smooth, no major complications. You’re back to your daily routine, working, teaching, taking care of the kids or enjoying your retirement...reactions2comments
Superwoman! I Feel GOOD!It has been around four weeks (this is the 4th week, although it feels longer) since I addressed my diet and upped the physical exercise. I think, overall, it is...reactionscomments
Let’s Talk About SexLet’s talk about sex. That’s right, sex. Before my bladder surgery, one of the biggest fears I had was that I would emerge an old man. I was 66 years...reactions2comments
How Anxiety Affects the Bladder Cancer CommunityThe effects of cancer extend so much further than just the body. This disease can wreak absolute havoc on mental wellbeing. Anxiety, especially the nerves that arise prior to annual...reactionscomments
The Mediterranean Diet: What is It & Will It Help Me? The Mediterranean diet has all the basic components of "healthy eating." It even allows for the odd cheeky glass of red wine, so what's not to like? If like...reactionscomments
Protecting Against a Future UTIUTI stands for urinary tract infection. Typically with this type of infection, there can be pain, burning with urination, possibly blood in urine, a frequency to urinate, cloudy, dark, or strange...reactionscomments
Lessons I Have LearnedI have been living with terminal bladder cancer for nearly three years now. I feel so incredibly fortunate to have had this extra time; this is something we didn't think...reactions5comments
Public Restrooms: The Dilemma of Using "Disabled" ToiletsPrior to having my bladder removed, I never gave "disabled" toilets a second thought. In fact, I would walk past them and assume that they were for use only by...reactions4comments
How I Handled Menopause and HRTHormone replacement therapy (HRT) isn't suitable for everyone, and there are some huge risks. One of them being that you may develop breast cancer. That didn't and still doesn't worry...reactions2comments
Why Patient Advocacy Matters and Why You Should Participate If You CanSince losing my first husband (Ahmad) to bladder cancer in 2014, I have gotten involved in patient advocacy related to bladder cancer. After he was diagnosed and during the course...reactionscomments
What NOT to Say to Someone with Bladder Cancer!Over the last three years, I think I have heard every kind of reaction to my "I have terminal bladder cancer." Let's face it, people are idiots who don't always use...reactions8comments
UTI: Run, Don't Walk To Your DoctorHello, everyone. I have been missing in action for approximately 5 weeks. The reason and subsequent actions will probably blow your mind. I have never been a person to have a...reactionscomments
Second Annual Checkup Looms: Does it Ever Get Any Easier?I’ve been supporting and advocating for bladder cancer patients for over a year now, after I myself went through bladder cancer in 2016-2017. My experience resulting in a Radical Cystectomy...reactionscomments
Two Caregivers Share Their StoriesIn so many ways, caregivers make it possible for people diagnosed with bladder cancer to survive. After I had my TURBT surgery, my mother drove me home from the hospital...reactionscomments
Communicating with Your Doctor About the Sexual Impact of TreatmentChanges in sexual functioning are common side effects of various forms of bladder cancer treatment. Some of these side effects may include decreased sex drive, erectile dysfunction, problems with arousal...reactionscomments
A New Neobladder: Life Goes OnOnce I had the staples and all the drainage paraphernalia removed, I was ready to start living my “new” life again. I had a bladder that thought it was still...reactions2comments