Preparing for Unrelated Major Surgery with a StomaI recently had to have a total knee replacement. I have needed this surgery for over 2 years, but due to having...reactions1comment
The Only Way Out Is ThroughWhen life is going well, it’s easy to forget the raw distress that a bladder cancer diagnosis (or even the possibility of...reactions1comment
Caregivers Make This Journey Less of a BurdenI love telling stories. In my opinion, storytelling is vital to carrying on family and memories and ensuring loved ones never fade...reactionscomments
When Our Adult Children Are Involved In Our CaregivingSo my eldest son had returned to our family home just a few months before my cancer diagnosis. I was feeling pretty...reactionscomments
What is Small Cell Bladder Cancer?Small cell bladder cancer is officially known as small cell carcinoma of the bladder (SCCB) or as a poorly differentiated neuroendocrine carcinoma...reactionscomments
BrothersI need to say, from the onset, I am angry. Exceptionally angry. More than that, I am heartbroken. Cancer has another of...reactionscomments
Navigating Palliative CareIn my job as an oncology social worker, I have the privilege of being part of a palliative care team but find...reactionscomments
Can Diet Help with Pain & Inflammation?I am a 48-year-old female. I have/had a Neuroendocrine, small cell Bladder tumor which had spread to my lymph nodes, liver, hip...reactionscomments
Returning to Work After a CystectomyYour work duties may be the last thing on your mind right now. But at some point, you are going to have...reactions1comment
Gaining PerspectiveSaturday, October the 5th, 2019 had a beautiful start. The sun was bright in the early fall sky. The roads were dry...reactionscomments
Bladder Cancer Comic: Sweet TemptationsCommitting to a new diet during the holiday season is tough. The temptation to indulge in delicious treats is everywhere! The humorous...reactionscomments
I Am More Than My Diagnosis: A Year in ReviewIn our Impact of Cancer Survey we asked what terms people diagnosed with cancer preferred and disliked. The answers were all across...reactionscomments
Living with Chronic IllnessIt’s been more than 3 and a half years, and I’m still living with the threat of my small cell bladder cancer...reactions1comment
Incontinence & Preserving My DignityThis is my 28th article. The number is not the milestone. The milestone is the fact that it has taken this many...reactions1comment
Cheeemo! Cheee-eee-ee mo!My rounds done and me wan' go home (Apologies to Harry Belafonte.) I had neoadjuvant chemotherapy before I had my cystectomy and...reactions4comments
Pace Yourself for the Holidays“Pace yourself.” What a radical idea! It is almost unheard of in our society. We live in a time of technology and...reactionscomments
Managing Cancer Side Effects as a CaregiverCancer itself and treatments for cancer can cause a number of symptoms and side effects that often deeply impact daily life. For...reactions1comment
Scope Week 2019: Accepting My EmotionsIf you are just joining me, please read “The Prelude: Learning to Cope with Anxiety and Panic Attacks” and then come back...reactionscomments
The Prelude: Learning to Cope with Anxiety and Panic AttacksAnxiety begins to manifest itself, in earnest, about a month out. It starts with the automated call confirming the upcoming appointment. It...reactionscomments
Bladder Cancer Comic: Prescription Pick-Up DecisionsCheck-ups and other urology appointments can be really stressful for people with bladder cancer. Having a friend, partner, or other caregiver attend...reactionscomments
