Before, During, and After My CystectomyThe morning of my radical cystectomy came, although I swear that night felt like it would never end. I said goodbye to my husband Tim and to my son Ash...Reactions0reactionsComments0 comments
The Small Can Become Daunting During CancerWhen life is good and we and our family are healthy, we often take for granted many small daily activities. We perform them with such ease that we don’t even...Reactions0reactionsComments0 comments
Deciding Between BCG and a Radical CystectomyIn an interview with BladderCancer.net, Shirley describes a phone call with her doctor during which he explained the two choices she had to treat her bladder cancer: BCG treatments or...Reactions0reactionsComments20 comments
Am I Dreaming?Walking into an operating room for the first time can be an intimidating experience. The “theater” I entered at Mt. Sinai was small, someone might even describe it as intimate...Reactions0reactionsComments0 comments
Sexual Impact on WomenWhile I was prepping to write an article for BladderCancer.net, I came across an article that really opened my eyes to the impact of Bladder Cancer (BC) on female sexuality...Reactions0reactionsComments1 comments
A Bag for Life!I was allowed to go home on day 5 after my radical cystectomy. I was eating, only little bits, mostly yogurts and jelly, and my bowels had opened, although I...Reactions0reactionsComments0 comments
Send Lawyers, Drugs, and Money – Sometimes Cancer Isn’t About YouYou just got the call. You have cancer. For some it will be a low number; Stage 1. For others the number is higher, 3 or 4. While some of...Reactions0reactionsComments0 comments
Bladder Cancer and Mental HealthThis week I read a very disturbing report regarding urological cancers and suicide. The statistics that I read I found very distressing. It got me thinking about my own situation...Reactions0reactionsComments0 comments
Why Cancer Patients Are Legitimately Frustrated with Medical BillingWhen my first husband, Ahmad, was diagnosed with metastatic bladder cancer, the disease and prognosis were challenging enough. Dealing with the medical bills was its own devastation. Cancer patients and...Reactions0reactionsComments0 comments
A Very Uncertain FutureThere’s nothing more shocking than to be told you have cancer. My wife Melanie and I drove home in silence that morning, afraid to speak for fear of realizing this...Reactions0reactionsComments0 comments
Radical Cystectomy and Sex: A Woman's PerspectiveI had a radical cystectomy just over a year ago. Prior to surgery, I was informed that the surgery would involve the removal of my bladder, cervix, appendix, ureter, part...Reactions0reactionsComments4 comments
Community Feedback: The Cystoscopy ExperienceA cystoscopy is a procedure that looks at the urinary system to diagnose and treat conditions of the bladder, urethra, and prostate. It takes a look inside the urethra and...Reactions0reactionsComments12 comments
TURBTs, PET Scans, and the Day of TruthAfter I found out I had bladder cancer, I was lucky enough to have private health insurance, so we arranged for me to go in and have a TURBT (have...Reactions0reactionsComments0 comments
What Is It You Plan To Do?At risk of sounding at best cliché, and at worst, utterly insensitive: find the good in your or your family member’s cancer diagnosis. When my first husband Ahmad was diagnosed...Reactions0reactionsComments0 comments
The Emotional Toll of Chronic IllnessTrigger WarningThe content includes information related to mental and emotional distress and it might be upsetting to some people. If you or someone you know have thoughts of suicide, have...Reactions0reactionsComments2 comments
6 Facts To Know About Bladder CancerSeveral members of the BladderCancer.net community shared that they knew nothing about bladder cancer until after they were diagnosed. We found that this is a common experience among people living...Reactions0reactionsComments20 comments
The JourneyBladder cancer doesn’t care about boundaries. Doesn’t matter what street, town, city, state or country you live in. It doesn’t care about trade agreements or political persuasion. It will attack...Reactions0reactionsComments4 comments
Cupcakes, Prosecco, and Bladder CancerI laid on the hospital couch, looking at the screen during my cystoscopy thinking, “What on earth is that?” My mind was all muddled; I had to close and reopen...Reactions0reactionsComments0 comments
Kegels for HerMost people relate Kegel exercises (Kegels) to women and childbirth. But did you know having strong Pubococcygeus (PC) muscles, the muscles that support the organs of pelvis, can help keep...Reactions0reactionsComments0 comments
RC Check-Up Anxiety: How I CopedSo, it’s time for that first annual check-up after my radical cystectomy. I knew what to expect: blood tests, a renogram and a CT scan of the chest and abdomen...Reactions0reactionsComments0 comments