6 Facts To Know About Bladder CancerSeveral members of the BladderCancer.net community shared that they knew nothing about bladder cancer until after they were diagnosed. We found that this is a common experience among people living...Reactions0reactionsComments20 comments
The JourneyBladder cancer doesn’t care about boundaries. Doesn’t matter what street, town, city, state or country you live in. It doesn’t care about trade agreements or political persuasion. It will attack...Reactions0reactionsComments4 comments
Cupcakes, Prosecco, and Bladder CancerI laid on the hospital couch, looking at the screen during my cystoscopy thinking, “What on earth is that?” My mind was all muddled; I had to close and reopen...Reactions0reactionsComments0 comments
Kegels for HerMost people relate Kegel exercises (Kegels) to women and childbirth. But did you know having strong Pubococcygeus (PC) muscles, the muscles that support the organs of pelvis, can help keep...Reactions0reactionsComments0 comments
RC Check-Up Anxiety: How I CopedSo, it’s time for that first annual check-up after my radical cystectomy. I knew what to expect: blood tests, a renogram and a CT scan of the chest and abdomen...Reactions0reactionsComments0 comments
How to Be an Empowered (and Empowering) Caregiver to A Stage IV PatientI was the caregiver to my first husband, Ahmad Khoshroo, during his 11 months facing Stage IV bladder cancer. It was the hardest thing I have ever done. Yes, it...Reactions0reactionsComments0 comments
When You Need to Travel for Bladder Cancer TreatmentFinding the right doctor to treat your bladder cancer can be challenging, and many of our community members have commented that they have to travel to a major cancer center...Reactions0reactionsComments2 comments
What is a Robotic Cystectomy?A cystectomy is the partial or total (radical) removal of the bladder. This can be done in multiple ways. Traditionally, a patient is given general anesthesia, an incision is made...Reactions0reactionsComments0 comments
The Hero in the MirrorThis is a short post. But one everyone who has been diagnosed with cancer should read. When you get the news you’ve been diagnosed with cancer, you never forget that...Reactions0reactionsComments0 comments
The Three Month Follow-Up: Part 2Part 1 of this article described Noel's anxious experience going in for a follow-up cystoscopy and realizing that a miscommunication in the office led to the urologist leaving for the...Reactions0reactionsComments0 comments
Diary of a Caregiver: Sun-DowningThis is the 4th entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or messages in our family’s closed Facebook group where...Reactions0reactionsComments0 comments
The Wisdom We Gain From Confronting Our MortalityWe all know that someday we will die. And while we know this in an intellectual way from a young age, I believe we only know it in a visceral...Reactions0reactionsComments0 comments
Cancer Slapped Me in the Face!Not the day I was told I had Lung Cancer. Not the day I was told I had Bladder Cancer. Not before or after my surgery to remove both left...Reactions0reactionsComments0 comments
Stage IV Caregivers, Acknowledge How Hard This Is So The World Will Be On Your SideWhen my first husband had Stage IV bladder cancer and our days were incredibly difficult, I remember wondering often: why doesn't the world seem to acknowledge how hard this is?...Reactions0reactionsComments0 comments
Telling Loved Ones About Your Bladder Cancer DiagnosisDealing with a diagnosis of bladder cancer on your own can be quite difficult. There are many important decisions to consider, and much to contemplate in order to take the...Reactions0reactionsComments2 comments
The Three Month Follow-Up: Part 1I've always championed this disease; right from the outset I knew I was never going to be defined by my cancer. I wasn't at all devastated when first diagnosed, but...Reactions0reactionsComments2 comments
Diary of a Caregiver: Back to the ICUThis is the 3rd entry in a series that chronicles my grandfather’s journey with bladder cancer. The following are actual emails or messages in our family’s closed Facebook group where...Reactions0reactionsComments0 comments
7 Things to Know About Hospice“Hospice” can be a scary word for patients and families, but in reality it is a wonderful service that offers so much in a time of need. One reason “hospice”...Reactions0reactionsComments0 comments
Balancing Good Health and a Good LifeI believe there is a sweet spot regarding being healthy and enjoying life. There is a way to balance pleasure and health. And it's worth remembering that illness will come...Reactions0reactionsComments2 comments
Making Medical Decisions That Work for YouShared decision-making is a collaborative process that allows patients and their healthcare teams to make decisions together. This process takes into consideration the most up-to-date clinical information and research in...Reactions0reactionsComments1 comments