Last updated: February 2023
Hi I’m a 47 year old female diagnosed with T1 high grade cancer carcinoma in situ. In the last 6 months I have had 3 TURBT’s and 1 round 6x of BCG. When I mention my diagnosis and doctor included I’m told I’m so young to have this diagnosis.
Treatment isn't straight forward
I’m scheduled for a second round of BCG and have been offered to be part of a trial for BCG and immunotherapy combined. The doctor did explain there is a 15% chance of missing a window where it can become invasive so there’s always the option to remove the bladder if I decide not to go with the 2nd round of BCG and trial.
This process is overwhelming...
I’m overwhelmed, and scared and having to make these decisions are giving me insomnia. I’m so glad I found this forum and thank everyone for sharing. I’ve been reading the stories which have been encouraging and also educational.
This is my story.
Help others feel a little less alone
How long did it take for you to receive a bladder cancer diagnosis?