Newly Diagnosed

Hi I’m a 47 year old female diagnosed with T1 high grade cancer carcinoma in situ. In the last 6 months I have had 3 TURBT’s and 1 round 6x of BCG. When I mention my diagnosis and doctor included I’m told I’m so young to have this diagnosis.

Treatment isn't straight forward

I’m scheduled for a second round of BCG and have been offered to be part of a trial for BCG and immunotherapy combined. The doctor did explain there is a 15% chance of missing a window where it can become invasive so there’s always the option to remove the bladder if I decide not to go with the 2nd round of BCG and trial.

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This process is overwhelming...

I’m overwhelmed, and scared and having to make these decisions are giving me insomnia. I’m so glad I found this forum and thank everyone for sharing. I’ve been reading the stories which have been encouraging and also educational.

This is my story.

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