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  • By TerryN

    I too have had recurrent bladder cancer for 11 years. Don’t get discouraged. I just accept it as of fact of life. For me I worry about my one kidney. The other one was removed because of the cancer.
    Thank God they can remove the tumor and then you are good to go.

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    • By sarah.wallin Keymaster

      Hi TerryN, Thanks for stopping by to introduce yourself! We appreciate you sharing about your experience and the encouraging words to others living with bladder cancer too. I hope you are able to find some peace amidst the worry about your kidney. Keep us posted on how you are feeling. Warmly, Sarah (BladderCancer.net Team Member)

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  • By Shirley Norris Moderator

    Hi I’m Shirley, I’m both a writer and moderator for bladdercancer.net. I was diagnosed with bladder cancer in September of 2016.
    Since my diagnosis I’ve undergone, cytoscopys, 2 TURBT’s and ultimately had a radical Cystectomy the end of January 2017. So I now have a Urostomy and a “bag for life”.
    I endeavour to write my true feelings about living with bladder cancer and to support those who are just starting their own bladder cancer journey.

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    • By sarah.wallin Keymaster

      Hi Shirley! Thanks for introducing yourself here. We’re so glad to have your perspectives about living with and caring for your urostomy on the site! -Sarah (BladderCancer.net Team Member)

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    • By whisler

      I am so sorry to hear you have been through so much in such a short time.
      I admire your Courage and general attitude of acceptance with a Cancer .

      Not new to Cancer , I am a Breast cancer survivor and I experienced a rare lung disease in my 5th year of being free of Breast cancer.
      . That magic number 5 did not work out for me! ( that all happened 1993 and 1998 )

      All good health until 2017 when bladder Cancer dropped in and reappeared again in 2018.
      Currently on BCG treatments after two surgeries .

      I find this Cancer terrifying and unpredictable. I feel I have just touched the tip of this Iceburg .

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    • By sarah.wallin Keymaster

      Hi whisler, I’m sorry to hear of your long journey with breast cancer and lung disease. It must have been really difficult when you got diagnosed with bladder cancer in 2017. I hope your recovery from surgery has been a smooth one and that BCG treatments have been going ok. So many others in the community have mentioned how they feel afraid and anxious due to the unpredictable nature of this cancer. You might be able to relate to this article about it (https://bladdercancer.net/living/anxiety-after-diagnosis-how-live-with-it/). Please know that the community is always here to support. I’ll be thinking of you! -Sarah (BladderCancer.net Team Member)

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  • By whisler

    Hi Sarah , Thank you for getting me set back up on your site

    In my last post I was receiving BCG treatments .
    After a 5 week break returned to the Doctor to check my Bladder and the success of the BCG treatment .

    Not good news — another tumor was present on the bladder . BCG failed although my cancer is non-invasive and low grade.
    However I have researched “much” and BCG is not the Gold Star for this grade of cancer but statics show a high success rate of this treatment .

    Needless to say I was totally devastated !! Mentally blown out of the water —!!
    Another Surgery August 20th with Chemo inserted directly into the Bladder for one hour after Surgery .
    Follow up in a few weeks—- Doctor hinted we will discuss
    future options/ treatments .

    Three surgeries in 18 months—- tough to wrap my arms around that.

    After Breast Cancer in 1993/ in my 5th year a Lung
    Disease appeared in 1998 … My health returned after that in 1999 and had not been sick or visited a doctor except for routine blood work and mammograms.
    I have been blessed to know only great health for 17 year..
    Trust me this cancer did not appear because of bad health habits— I exercise , eat low-fat, no junk food , no sweets..
    so much for all those theories on avoiding cancer.

    However I have accepted the fact that this Bladder CA is my new-normal, that black cloud over my head is forever..
    I trust that Father God will create “something Good out of
    of all this suffering and anxiety.
    My life is about to “change”again/ I just have to wait on Father God to reveal Himself .

    We all bear crosses: mine have been Breast Cancer, Serious Lung Disease , loss of my husband at 61 and now Bladder Cancer—
    Image with all that i can still Thank the Father for all my Blessings …
    I pray for all of us suffering with with very nasty Cancer.
    I so appreciate a place to go and “vent”… one has to:Walk this Path to understand the Sorrow it can bring into your life .

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    • By sarah.wallin Keymaster

      Hi whisler, How have you been doing these days? Sorry to hear your BCG treatment failed and they found another tumor. That must have been devastating news. Having 3 surgeries in a short span of 18 months is surely a lot to wrap your head around. After all that you’ve been through with your other cancers it is encouraging to hear you are still thankful for all of your blessings. I’m sorry for the loss of your dear husband. Please know that this is always a safe space to talk, and that the community is here to support you.
      -Sarah (BladderCancer.net Team Member)

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