Today I was notified that I can now start my BCG treatment after 18 months since first being diagnosed with bladder cancer and 5 TURBT surgeries later. I have aggressive invasive high grade carcinoma bladder cancer insitu. They found I had BC when I had a hysterectomy in September 2018. It was low grade at the time and didn't require BCG at this time. At my next cystoscopy it became a high grade aggressive BCC insitu. At this time I became very unwell with a condition called Temporal Arteritis which can cause permanent blindness. For this treatment I was put on a very high dosage of steroids. You cannot have BCG on 75mg of steroids I found out. My specialist wanted me off the steroids completely before starting BCG. This was going to take at least a year to come off them if all went well. This disease can last up to two years. So in the meantime I have been having TURBT surgery every 3 months to remove new growths (5 in total) the last surgery was Monday 13 January 2020. I am now down to 4mg of steroids and my NEW specialist has given me the go ahead to commence BCG. Yippee!!! I have been waiting 18 months for this day but now I am so scared of what is to come. I will be susceptible to side effects because of the steroids and also my urethra valve back to my kidney leaks a third of the way back up to the kidney which is a bit worrying. I only had my surgery two days ago and I start BCG in the 5 days time. Is this too early as my bladder wouldn't have healed, another worry. Mentally I have been very good and I haven't broken down once and been very positive. Wish me luck!!!